Lyme disease?... Please help...

For years now (i am 17) i have been struggling with this feeling that i feel like i'm 'detached' from myself like an unreal feeling, like im in a dream state in a way this is constant, 24/7. I do not get a break from this feeling. I've struggled with this feeling for years now, it progressively got worse and now it's just too hard to do anything. Going to work and school is hell. I used to have panic attacks all the time, anxiety over this feeling. I thought i had some horrible disease.. Been tested for everything been to so many doctors, cat scan on brain, mri on neck, ultrasound on stomach, endoscopy and biopsy.. nothing.. just some inflammation in my esophagus and stomach is all.. and my nose is always clogged even when my allergies arent acting up.. I get this pain on the left side of my stomach, its very uncomfortable sometimes to the point where i have to bend over and squeeze that side with my stomach muscles to relieve the pain. I have neck stiffness, very bad. even when i go to my chriopractor and get adjusted it still is stiff. my chest recently just started to become 'stiff' not that long ago. It cracks a lot. I get this white light strobe light like floater in my left eye. I get headaches, migraines.. sometimes i get tingling in my left upper arm or a slight numbness feeling.. sometimes (rarely) i go slightly deaf in one of my ears.. also, my face (under my eye usually) will twitch too. I do sometimes get pains in my knees.. We thought it might be candida, but the endoscopy would have showed that most likely.. we thought it could be gluten intolerance.. not sure anymore though.. i'm being tested for celiac right now.. but I was talking about lyme and i used to get A LOT of ticks on me as a child. i used to climb trees and such and my mom would always check me and we had to always get some off of me.. there was one that was really hard to get off of me i remember.. and i also had ringworm when i was little, on my face up on my forehead.. But i went to school with it and it had spread to other parts of my face too and it was so bad the school told me i had to go home.. and ringworm is supposably really contagious.. but no one i touch had got it.. maybe it was the rash from a bite from a tick? is this possible?... does anyone think i should go talk to a lyme specialist or to save money anything you know that i could take to see if i feel better? Please, i just want my life back. You have no idea how hard it is to live with this.. i go out trying to smile to be happy as i usually am and i just come home and cry.. my boyfriend is doing everything he can to make me feel better as well as my mom.. please


AND i've been to SO MANY DOCTORS AND SPECIALIST it's ubsurb.. I'm depressed. so depressed.
Im a happy person, rarely seen without a smile, but not anymore and that is what makes me mostly upset, the fact that my life is great but this 'illness' or whatever is holding me back..
here's a list of some doctors i've seen.
-neurologist (cat scan of brain normal)
-endochronologist (blood tests normal)
-cardiologist (heart is completely normal)
allergist (have allergies to mold, pollon, grass, maple trees, dogs cats etc. and high mold allergy)
chiropractor (my neck and spine are HORRIBLE which is why it could be related to lyme because i have read lyme affects joints and such..)
specialist doctor (glucose blood test, showed low blood sugar but i was told by the endo that test is stupid and the doctor tried to tell me i had diabetes but thats bullcrap because they checked for pre-diabetes and diabetes and NOTHING.)
I had a gluten intolerence blood test and it came back ABNORMAL.. so they are testing me for celiac but the results havent come in yet.
Gastroendronologist (sp?) Had a endoscopy and they did a biopsy on my stomach and celiac to check because i had inflammation in my esophagus and stomach and they're trying to find the reason. (has not come back yet) they're checking for celiac as well.
I've had a MRI on my neck for my nerves and all is well..

AND DON'T TELL ME ITS ANXIETY/DEPRESSION. THERE IS A REASON I HAVE ANXIETY/DEPRESSION AND IT'S OVER WHATEVER THE H IS HAPPENING TO MY BODY AND WHY I FEEL THIS WAY. i know my body better than ANYONE else, i hate when i hear that cr. People kept telling me to be positive and it would go away.. IT'S BEEN YEARS. AND I'VE ALWAYS STAYED POSITIVE, NOW IM FED UP

I'm miserable.. i've done all the test why can't i just have an answer.. i'm so young i want my life back .. please

Post Edited By Moderator (achievinggrace) : 11/25/2011 4:57:59 PM (GMT-7)

Thank you so much.

How can i find a lyme doctor? I'm not sure if there is one around here or how can i find out

Hi Coleyx100,

I am so sorry to hear about all you're going through. You sound a lot like me before I got my (2nd) Lyme diagnosis. Everyone telling me it's just anxiety or depression, or a bunch of random lab abnormalities that don't really mean anything...I was diagnosed with chronic fatigue syndrome, fibromalgia, IBS and even bipolar disorder in my 10-year journey to finally finding out that it was Lyme.

I would suggest seeing an LLMD...I went to flash.lymenet.org to find one, and got a lot of suggestions. That's where I found the doctor I'm seeing now.

I'm obviously not a doctor and can't tell you exactly what's wrong, but there is something real going on there. I noticed you said you're highly allergic to mold and right now I'm dealing with all my mold issues...living in a house that's been flooded severely several times, and I always get worse after floods. I stayed with my sister for 3 months and just moved back into the flooded house, and have felt markedly worse since...so maybe look into mold? Is there any in your house or where you work?

There are so many different things, unfortunately, that make people like us sick in the way that we are. There's Lyme, there's coinfections that often come with Lyme, there are viruses, toxins...tons of stuff. I have Lyme, probably Bartonella (I find out tomorrow), mycoplasma, parvovirus, EBV, and a genetic inability to get rid of mycotoxins/neurotoxins. I hate to say it but it takes time. A lot of time and research and usually a lot of doctors, but I can tell you that once you find a good doctor who takes you seriously it makes all the difference in the world.

I know what it's like to be the happy person who just can't keep up the smile anymore, and to feel detached...boy do I know the feeling! I've been to so many doctors giving me the simplest explanations for the ridiculous amount of symptoms and suffering that I deal with...it's been 10 years and I feel like being a patient has been my full time job, and most of my life experience. My best advice would be to educate yourself as best you can, read some books, do some internet research, ask around, whatever you can. I honestly don't know if I've got it all figured out yet - every day I'm learning something new and trying to integrate it into my treatment plan...always a new test or a new supplement or medicine...it's a process. Just try to stay strong, and whatever you do, do something. You owe it to yourself to fight for your health. I wish you all the best.

Whitney

Hi Coley, you have described some of my most common symptoms.. The disconected feeling for me is not constant but I definitely have it.. Stiff neck and bad headaches is very common.. Have you been tested? Thats the 1st step.

Coley,
We've been where you are now, so we really do understand - that's why we are here! Once you get started in some treatment, you will see a big improvements!

There are a few things that you can start doing even now- like detoxing, dry skin brushing, getting your diet as healthy as possible, and drinking lots of lemon water. These things will begin to help you feel better, as they will help get the toxins out of your body.

Be sure to let us know how the LLMD's appt goes!