tHE IDSA asked the question "what would u like to see from us in the coming year?"

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Lyme Disease

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borderlyme

Veteran Member

Joined : Jul 2011

Posts : 1486

Posted 1/5/2012 11:55 PM (GMT -5)

I've been following this all day - it's really moving, isn't it? It's gonna be hard to ignore such a presence! This all seems like a step in the right direction :)

Hopeful Maxine

Regular Member

Joined : Sep 2011

Posts : 185

Posted 1/6/2012 2:47 PM (GMT -5)

1370 . . . . don't stop now!

Purplegirl

Regular Member

Joined : Dec 2011

Posts : 329

Posted 1/6/2012 2:51 PM (GMT -5)

I added my thoughts :) Its up to 1,374

Hopeful Maxine

Regular Member

Joined : Sep 2011

Posts : 185

Posted 1/6/2012 6:12 PM (GMT -5)

It is up to 1438. We must keep this thread going to make sure everyone reads it. It is so important for all of us. Add your remarks :)

LymieAngel

Regular Member

Joined : Sep 2011

Posts : 466

Posted 1/6/2012 9:45 PM (GMT -5)

theres been about 300 comments deleted...it was at 1800 early this morning...then when i checked again it was a little over 1350 but its inching back up i think its at 1480 now....people r getting enraged about their comments...im guessin they r thinking no one will notice...but there are several that have copied the whole thing since the beginning....and there are about four or five that have sent the whole thread to erin Brokovich.."whistleblower"

skBM

Regular Member

Joined : Jun 2011

Posts : 330

Posted 1/6/2012 10:39 PM (GMT -5)

Scarlet Grace

Regular Member

Joined : Nov 2011

Posts : 110

Posted 1/6/2012 11:42 PM (GMT -5)

So how did so many people with Lyme find out about that post? 1800 is a lot of people!

Hopeful Maxine

Regular Member

Joined : Sep 2011

Posts : 185

Posted 1/7/2012 12:28 AM (GMT -5)

Thank goodness for social networking . . .

Hopeful Maxine

Regular Member

Joined : Sep 2011

Posts : 185

Posted 1/7/2012 5:42 PM (GMT -5)

1684 . . . and counting!

LymieAngel

Regular Member

Joined : Sep 2011

Posts : 466

Posted 1/7/2012 8:41 PM (GMT -5)

and counting....lol........facebook has become an advocate for alot of lyme sufferers......people from the UK germany switzerland have got in on this too...wooohooo

Hopeful Maxine

Regular Member

Joined : Sep 2011

Posts : 185

Posted 1/8/2012 7:54 PM (GMT -5)

1850 . . .

Hopeful Maxine

Regular Member

Joined : Sep 2011

Posts : 185

Posted 1/9/2012 1:14 PM (GMT -5)

1930 . . .

Hopeful Maxine

Regular Member

Joined : Sep 2011

Posts : 185

Posted 1/9/2012 6:44 PM (GMT -5)

1973 . . .

Traveler

Elite Member

Joined : May 2007

Posts : 36573

Posted 1/9/2012 6:49 PM (GMT -5)

Hi All,
No to spoil the fun, but please start a new thread as this one is getting too long. You can just name it IDSA's FB part II or something if you want!

Thanks so much for your understanding!!
Trav

Hopeful Maxine

Regular Member

Joined : Sep 2011

Posts : 185

Posted 1/9/2012 9:51 PM (GMT -5)

2006 . . . keep coming!

LymieAngel

Regular Member

Joined : Sep 2011

Posts : 466

Posted 1/10/2012 5:22 PM (GMT -5)

hopeful maxine u seem to be able to keep up with this better than me...start a new thread so peeps can follow it....they have also snapshotted the whole thread before deleted comments and made a page from it....so while the IDSA deletes comments, this fb page is posting ALL OF THEM......i think its called IDSA question and its responses

Hopeful Maxine

Regular Member

Joined : Sep 2011

Posts : 185

Posted 1/10/2012 10:13 PM (GMT -5)

www.lymedisease.org/news/touchedbylyme/idsaresponse.html

This is the response by the IDSA regarding the facebook page responses if you haven't already read them.

Traveler

Elite Member

Joined : May 2007

Posts : 36573

Posted 1/11/2012 9:47 AM (GMT -5)

Okay, I asked that a new thread be started because I was hoping that I would have to lock this one in order for that to happen. I need to lock this thread because it's too long - please start another thread!

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