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Posted 3/20/2012 8:41 PM (GMT -5)
We waited three months to finally get to a lyme specialist who seem to know what he was talking about. Ws told it ws all psychological even though we have had positive bloodwork--Well worth the wait- His name is Dr. M in pa and he takes state insurance on case anyone need a lyme specialist that might live in the area. She has tested positive for lyme, mono and rocky mountain spotted fever some months go-Yesterday he told her she also has the co-infections of babesia and bartonella-- He told her to go gluten free-- no sugar or caffeine-- and no eggs or milk-no night shades. She can have buttermilk and ducks eggs as a alternative- I was wondering if anyone else has had this diet and do you want to give me any hints... she has been really sick and just ws released yesterday from the hospital to go to this lyme appointment and I really want to do this right.. Have read alot, just want to know if anyone else has seen success with this.. Thank you for all your input it is greatly appreciated.

Post Edited By Moderator (achievinggrace) : 3/21/2012 6:50:53 AM (GMT-6)

Posted 3/21/2012 8:57 AM (GMT -5)
My daughter is also on that diet. Gluten-free is not too bad, the sugar thing is extremely difficult for her. She is 17, so of course, that makes it harder!! All her friends exist on pure junk!

It is hard to tell if that has made a difference, but something has, as she was practically unable to eat and had lost 15 lbs from an already tiny body. She can now eat fruits and vegies again and has gained most of her weight back. What I mean when I say it is hard to tell, is because we have done many things at the same time--she started abx, digestive enzymes and probiotics; lots of detox--now she is off abx and we are treating naturally, but she is still on the same diet.

My daughter's nutritionist recommended a "Paleo" style diet. And I have seen that recommended other places for chronic illness. Basically, it is GRAIN-free, dairy-free, sugar-free. I will tell you that she does eat some grains and flour substitutes that are gluten-free, but the Paleo plan gives us lots of ideas and it is what we aim for. I now make grain-free crackers, and desserts with fruit--that helps her a lot. It helped me to join some "Paleo" FB pages, They send out recipes, and it helps me a lot. Look up "Clean Eats in the Zoo" and "Paleo Comfort Food"--those are 2 of my favorite sites. Green smoothies are another way to get great nutrition--greensmoothiegirl.com is the site that got me started on those.

Good for you for wanting to do this!! You can email me any time--- we have been at this a little over a year now, and my child was literally bedridden. She is now out doing things with friends a few times/week--not well, but headed in that direction!!

God bless!
Posted 3/21/2012 9:20 AM (GMT -5)
Personally, I don't just do gluten free, I do starch free (even starchy veggies) sugar free (almost no fruits, just an ocassional grapefruit or handful of berries) no processed foods and no dairy (except for a low glycemic all natural yogurt ocassionally)

It's the way I do things. I can't live with feeding these bugs or the candida inside me. I can barely eat anything and I'm getting REALLY sick of it, but for now I'm sticking with it until I can not anymore. If I do cheat, it will be with some brown rice or quineoa, but I haven't yet ..........
Posted 3/21/2012 1:11 PM (GMT -5)
Lots of info on paleo diets at:

http://www.robbwolf.com/

"Robb Wolf, a former research biochemist is the New York Times Best Selling author of The Paleo Solution – The Original Human Diet. A student of Prof. Loren Cordain, author of The Paleo Diet, Robb has transformed the lives of hundreds of thousands of people around the world via his top ranked iTunes podcast, book and seminars.

Robb has functioned as a review editor for the Journal of Nutrition and Metabolism, is co-founder of the nutrition and athletic training journal, The Performance Menu, co-owner of NorCal Strength & Conditioning, one of the Men’s Health “top 30 gyms in America” and co-owner of Paleo Brands Inc. a paleo food company selling meals and snacks featuring grass fed meat, wild caught fish and all organic ingredients."

He and Dr Cordain also have a variation on the diet for autoimmune diseases - I think that is what your doctor is getting by eliminating the eggs and nightshades.

Post Edited (rowingmom) : 3/21/2012 12:18:37 PM (GMT-6)

Posted 3/21/2012 2:07 PM (GMT -5)
For me gluten literally equals muscle and joint pain. If I consume it my pain levels soar up. It's really critical with Lyme to stay off of the gluten.

Sugars and refined carbs are feeding yeasts and bacterias, so you need to stay away from them.

My nutritionist has me off of grains too, she said it's for gut health.

I love my smoothies. I have a fairly high powered blender and I make green smoothies and a beet smoothie every day. It's also good to drink water with cucumber slices or lemon slices.

Diet is a huge part of healing and feeling better. When I follow the diet I feel so much better, it's well worth it.

Posted 3/21/2012 2:51 PM (GMT -5)
I was told no beets bc they have a lot of sugar :(

Love--what do you eat for "carbs"? Isn't rice a grain? Sorry I'm only just learning these things:-)
Posted 3/23/2012 8:09 AM (GMT -5)
Paleo Diet recipes: http://paleofood.com/


Gluten free recipes: http://gfrecipes.com/


Dairy free links/info: http://nomilk.com/


Candida info: http://candidapage.com/

 

Posted 3/26/2012 7:10 AM (GMT -5)
I recommend all my patients go gluten free. I'm gluten free myself and have never felt better.
One may or may not be gluten sensitive, but when there is active infection, gluten causes stress on the body.

Once I went gluten free, it was a real turning point for me
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