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Anyone try low dose naltrexone?

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Posted 12/13/2012 2:38 PM (GMT -5)
Forgot that my LLMD gave me an RX for lose dose naltrexone and have yet to send over to compounding pharmacy.  Still trying to calm down neuropathy pain.  Anyone tried this for lyme?  Thanks.
Posted 12/13/2012 2:53 PM (GMT -5)
Seems to work well for some, so I do think it is worth a try.

Although my own experience with LDN was less than positive...seems to have increased my inflammation rather than decreased it...
Posted 12/13/2012 2:57 PM (GMT -5)
Wow. Really? I think I'll hold off while I try this new antibiotic combo. Thanks!
Posted 12/13/2012 3:18 PM (GMT -5)
I have used it for a while thinking that my symptoms were MS related. I did good for a short while and then it horribly backfired.

At that point I knew I had Lyme. It was scary how sick I became.

If in doubt...let it be.
Posted 12/13/2012 8:55 PM (GMT -5)
springsjean,

Heather's LLMD prescribed LDN to her when she started her relapse. It didn't do anything for her. On the other hand, her LLMD stated that he has seen good results in most of his patients that have used it. It is easy to tolerate for almost everybody because of its low dosage. It is definitely worth a try.

Is your doc using it to calm down neuropathy? Heather's doc was using it to bolster her immune function, if I remember correctly. Of course all of the issues pertaining to Lyme are interrelated with everything else. LDN usage is off-label from the full strength usage for other health conditions. At least that was the situation 3 years ago when Heather used it.

Don
Posted 12/14/2012 8:02 AM (GMT -5)
I have used LDN for over a year now and it has been wonderful for me.

We had to play with the dose for a bit to find what worked best, as well as I made sure I purchased from a reliable compound pharmacy that was very familiar with LDN.

There are alot of positives about LDN (Lyme aside) and since it is pretty darn inexpensive, I willo stay on it as long as my Dr. will write the Rx for it!
Posted 12/14/2012 10:21 PM (GMT -5)
I have been on it for 9 months. My LLMD was using it to decrease pain and help with sleep. I found that it worked at first, then I needed to up the dose but it's still soooo low and I really like it. I can't say with 100% certainty that my pains are less and sleep better solely from LDN but it has at least been a big contributor for me. I know lots of fibromyalgia people who have been using it for years for pain and better sleep. I use a good compounding pharmacy and think that if you have one you can trust and it's not too expensive it may be helpful.
Posted 12/15/2012 10:18 AM (GMT -5)
There's a natural alternative for anyone who is interested - Avena Sativa - wild oats in the 'milky' stage. I use 20 drops, 3 times a day. It works on the nerves directly, so it'll help not only anxiety, but neuropathy too. It does take a while to heal those nerves, but if given the time, it really does work! I couldn't make it without it!

Springsjean,
I know that LDN has been discussed a lot here previously. Maybe if you use the search feature you could get a lot more info.
Posted 12/15/2012 9:02 PM (GMT -5)
Traveler, I have parasthesia, do you think it will work for that too? It started to get better for a bit like on a scale of 1-10 it was about a 3-4 daily, but recently it's increased to a 7-8 and I'm not sure why. But it's very bothersome and distracting....
Posted 12/15/2012 9:34 PM (GMT -5)
Thank you so much everyone!! So much good information. Now if only my nerve endings would cooperate.
Posted 12/15/2012 10:38 PM (GMT -5)
This is interesting. . . My daughter's first Lyme dr would not prescribe it for her, and I just asked her pain dr if he thought it would help her. He refused to write for it and the nurse I spoke to did not know why. I will call and ask, but would anybody have a clue why 2 drs would not want to try this? It sure seems better than the valium and hydrocodone she was addicted to!!
Posted 12/16/2012 10:28 AM (GMT -5)
I can tell you that a couple of months after I started using Avena Sativa, a lot of my nerve issues have gotten better, including parasthesia (burning, tingling, itching).

I do have to say that I still have little bouts of it though, but it's nothing like I used to have. I used to scratch until I had big sores -especially on my lower legs and forearms - because I just couldn't stop myself! Even if I could keep my hands off the areas during the day, at night while asleep, I would evidently scratch like crazy - either that or some gremlin would sneak into my bedroom and scratch me all up! LOL!!
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