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Lyme Disease
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Posted 3/25/2013 9:56 AM (GMT -5)
I'm scared and I just wish I knew what I was doing. My liver enzymes are okay which is good but I've been taking milk thistle 600 mgs a day and another homeopathic thing. But they were double what they were previously. But I'm not on any medicine that is even supposed to effect the liver...all in all I'm okay.

But I feel like I'm moving backwards. Yesterday I reorganized and stocked are upper cabinets so I was on my knees on the counter...today I have bruises there..I thought I was supposed to be getting better. I've never bruised from something as simple as being on my knees on a counter (which granted, is made of concrete). My skin is not healing like it was. I guess my body is not either.

I've been using things that are supposed to 'boost' my immune system. I guess those aren't working either.

I am thankful that I am still here.

Posted 3/25/2013 10:04 AM (GMT -5)
Are you treating yourself for possible MTHFR mutations? Im going to sound like a broken record to people about this. But when I hear about liver stress in someone who has chronic illness my brain screams MTHFR.

The skin issue is another clue.. collagen is effected
http://www.ncbi.nlm.nih.gov/pubmed/16179747
Posted 3/25/2013 10:06 AM (GMT -5)
On the matter of raised LFTs that are not attributable to meds the coinfection Bartonella is a notorious culprit. Just one ref from the bartonella team;

http://www.biomedcentral.com/content/pdf/1471-2334-12-17.pdf

Remember coinfections are the norm and 'conventional LLMD' wisdom is to deal with them first.

Don't panic or be scared, there will be an answer, you just need to find it. Keep in mind that emotional disturbances or instability are often symptoms, and frequently associated with the coinfections.

L8r sk8r

Hugh
Posted 3/25/2013 10:08 AM (GMT -5)
I haven't yet. I'll ask my doctor about it the next time I go in. I do have collagen issues but only since the disease hit. And they aren't terrible. Just a lot of ingrown hairs.

I'm pretty sure the doc knows that I have bartonella, he is very cautious in how he proceeds with medicine. Keeping in mind that at the time lyme was probably my dominant infection...severe brain fog, insomnia that went away on just 100 mgs of doxy 2x a day. So because the doxy was so effective I'm assuming he wanted to at least get that under control with ceftin before starting the coinfections.

I am hoping he will switch methods a little bit next appointment and focus on the bart/possible  babs coinfections. Of course I'm concerned about my liver. I'm not too sure about the MTRFR gene though. When I've herxed to something like Houttuynia, it stops the next day. I thought if you couldn't detox you would be achy all the time and your herxes would never stop.

Post Edited (opugirl) : 3/25/2013 9:16:52 AM (GMT-6)

Posted 3/25/2013 10:22 AM (GMT -5)
Anything work for bartonella that doesn't effect liver enzymes? Besides Houttuynia and sida acuta?
Posted 3/25/2013 10:26 AM (GMT -5)
Just sayin that if your LFTs aren't outside normal ranges I wouldn't be too concerned. My Alt has been between 35 and 105 for the last year, my LLNP says he is only concerned with sustained values of hundreds - as indicative of actual liver damage. My Alt came hurtling down on clarithromycin and rifampin for Bart - plus the latter abx is notorious for playing havoc with the liver!

Agree with you that time to feel better following herx is indicative of your body's ability to detox - 1-2 days is average. Taking a supplement will get you round the possibility of MTHFR quickly.

Hugh
Posted 3/25/2013 10:46 AM (GMT -5)
Do you mean 1-2 days of continuous herxing is normal? Just curious b/c on bactrim I would get waves. Same with the doxy. Feel like crap then feel fine then feel like crap and then fine.
Posted 3/25/2013 11:42 AM (GMT -5)
Sorry - to clarify, my llnp has me do challenge tests to diagnose infections/ dominant pathogens. He says that when you stop taking the challenge med, whatever it maybe, you should clear your herx reaction in 1-2 days. I dont know how this translates given the periodicity of infections in the bloodstream or due to morphing between stages when using a med constantly but would imagine that whenever the med isnt doing its work, for whatever reason, one might expect periods of improvement after 1-2 days albeit you need to account for the side effects of the meds.
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