new to lyme help/ hx of fibro

I havn't been diagnosed but am seeing an llmd soon. Your symptoms are a lot like mine and i know what you mean by being scared to death. I am counting the hours until my appt. and hope to finally get some help :(. I saw drs for the last six months, have been bedridden a lot lately and feel like i lost my life. Funny ive told every dr that i thought i had been bitten by a tick and they all blow me off. Hang in there, thats what im doing and trust your instincts and body. I feel your pain and know you are not alone. My dang ears have been ringing for a month straight and its driving me nuts!

Hi Mystery1!
Welcome to our little community!! Unfortunately, your story is fairly familiar here. Many of us were sick for years before anyone recognized what was going on, or we just got sick and tired of waiting and started at home treatments ourselves, only to finally start feeling better.

You need to know that the Bulls eye rash is the skin form of a Lyme infection. Cherry angiomas are a typical symptom of Babesia. Lung congestion like that could be from a Mycoplasma infection or from Babesia or Bartonella. Now none of this is actual medical advice, only knowledge that I have managed to gather from the reading that I've done and from the wonderful people here sharing their stories.

If you haven't already, it would be helpful for you to start with reading through the thread at the top of the forum titled,"New to Lyme?...Start here!!", as it is packed full of important information, symptom lists (as Lyme rarely occurs by itself), helpful links and pdf's, how to detox when one has these infections, and a list of questions that you can ask any doctor that you are seeking treatment from!


We also have a pretty good search function on this forum to help you narrow down your search for information from past posts. We must be our own health advocates now and the best thing to arm yourself with is knowledge about our infections and the different ways to treat them!

For information on finding a Lyme Literate Medical Doctor(LLMD) in your area, you can start a new thread titled something like:"Looking for LLMD in the _______ area." Although you will need to enable your email option in your profile in order to receive any recommendations, as we don't allow doctor's names and contact info to be posted on the forum for several reasons. You can enable your email option in your profile, under 'edit profile'. Be sure to click the submit button to actually save your preference.

You can also email our long time member, Dan's Mother at:phassan@optonline.net

You can also email Stephanie at: stephanie@turnthecorner.org You can also go to: www.turnthecorner.org/ if you want to learn a little bit more about Lyme Disease.

You can also go to The Lyme Disease Association and search for LLMD's 3 times in a month. You have to register first. Here is the link:www.lymediseaseassociation.org/index.php?option=com_content&view=article&id=277&Itemid=74

You will want to find an ILADS (International Lyme And Associated Diseases Society) trained doctor, as ID Docs (Infectious Disease Doctors) believe Lyme is hard to catch and easy to treat, and don't believe in the reality of chronic Lyme. The ILADS site is another great place to read to get you started on your Lyme journey. www.ilads.org/lyme_disease/treatment_guidelines_clearing_ilads.html

Keep reading and keep asking those questions! Information is power with these infections!

It's very unfortunate that the Western Medical establishment refuses to even admit that Lyme is an issue in most states, as the only thing that does is to allow these infections to go untreated and either taking or compromising the life of the infected person. I had these infections for over 40 years and was passed from doc to doc all of that time....and my story is far from unique.

Don't be scared, be informed! We share a lot of info on this forum, so be sure to use the search feature here to help you learn all that you can from the past posts as well.

Find a good LLMD! They are not all created equal!! You need to find one that you can trust, as you will likely be getting treatment from the for a while - these are incredibly complex infections.

And, of course, you can come here to ask any questions, to vent and to find a shoulder to lean on as you need!!

Hi Trav,

We've had exactly the same post before,the eggs facinated me then,too.

We were wondering if it is spam?---SPAM AND EGGS?

Tickled