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Lyme Disease
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Traveler
Elite Member
Joined : May 2007
Posts : 36573
Posted 5/16/2013 5:41 PM (GMT -5)
Cat,
I went to her site (Sarah Vaughter's), and the first thing I noticed was that she is there to sell her wares, so be careful and only take the information that you can back up elsewhere. I've found things on that site about
Lyme that I certainly don't agree with, like the statement "If you have Lyme Neuroborreliosis you likely will likely succumb to it eventually if you don’t receive proper,
open-ended
treatment." I made the '
open-ended' bold type. Although there is some truth here, I completely disagree with the
open ended treatment part. I'm not on
open-ended treatment and I definitely had Neuroborreliosis!!
bluebyyou
Veteran Member
Joined : Nov 2006
Posts : 1952
Posted 5/16/2013 6:03 PM (GMT -5)
Good point.
I sent my mom the link to the Lyme and MS post. My mom is both shocked and amazed. She has MS, but she had a bull's eye rash in 1982 and no one knew what it was.
jupitergma
Regular Member
Joined : Mar 2013
Posts : 61
Posted 5/16/2013 7:14 PM (GMT -5)
Hi all,
I decided to post an email that I sent to Trav so as to clear up any misunderstandings about
Sarah Vaughter's website that I might have caused.
"Hi Trav,
You're absolutely right! When reading through a website that contains so much information I tend to just skim through what I don't believe, mistakenly assuming that most on the forum who have educated themselves where this disease is concerned would do the same. I should have made myself more clear. I don't believe in
open-ended treatment either. I was just so excited to find a site that so accurately "outed" the entire medical system. It was quite vindicating for me. I was also touched by the patients' comments (well most of them anyway), as I am when reading anyone's personal story. There was one comment, the context of which I've read before, which always brings me to tears...
"I believe that these are crimes against humanity. Those who deny these facts, or say "There is no such thing" is as offensive to me, as telling a survivor of death camps the Holocaust never happened."
So thanks so much for the heads up. Just want you to know I believe NOTHING without proving it for myself. My kids (Denise 43 and John 39) are always teasing me about
having a "comically suspicious" look on my face while researching anything. LOL!"
JupiterGma
Cat53
Veteran Member
Joined : Jul 2012
Posts : 672
Posted 5/16/2013 7:38 PM (GMT -5)
Trav, I am always careful. I was raised by a police officer- who retired as a captain- so I learned to really question what people have to say. That is why I did the research and found out Lyme mimics these illnesses. Otherwise Toby and I would have probably accepted his diagnosis. Like I said, I like her straightforward attitude and she does have Lyme so we can relate to what she has to say. I think most of what she is posting is on the mark.
Traveler
Elite Member
Joined : May 2007
Posts : 36573
Posted 5/17/2013 7:10 AM (GMT -5)
I'm glad to hear that you too 'examine' the articles! There is just so much misinformation out there, that it really pays to be at least a bit skeptical!
I always worry that people (because some do) just take the word of whoever on their illness, without ever checking it out!
Cat53
Veteran Member
Joined : Jul 2012
Posts : 672
Posted 5/17/2013 6:05 PM (GMT -5)
Trav, Thank you for your concern. I know this is why you take the time to assess what people post because you care. I really do appreciate what you do for everyone on this forum.
Traveler
Elite Member
Joined : May 2007
Posts : 36573
Posted 5/17/2013 9:35 PM (GMT -5)
Awww, golly gee shucks!
*Kicks dirt with toe of boot*
Thanks! I really do care about
everyone on here, even though there is a turn over, with new people arriving and older members "fading away", I get attached to you all quickly! LOL!
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