LLMD?

I have been sick for six months with this misery. My PC has done as much as he knows how to do with antibiotics but the response to three months of doxecycline and flagyl has been less than hoped for. He offered to refer me to a LLMD but the closest he knows of is in the Washington, DC area and I live in Tidewater, Va area. I don't have means to travel that far for treatment. It seems nuts that an area the size of the one I live in with millions of people has no LLMD's! I tried the referral sites for LLMD's and got same results as what my doc told me...Closest is DC area...So, any suggestions? I could sure use a support group in the area. I haven't been able to find any information about this...

According to a report on CBS Evening News last week, it is estimated that the official number for Lyme cases in the US of 30K is ten times too low and the actual figure if closer to 300K...And it is treated like something of little importance by the "medical community"?...WOW...I am totally disabled and nearly non-functional with severe neuro symptoms that come and go after three months of oral antibiotics. My PC doc has referred other patients to the closest LLMD but their insurance won't pay for it and will not pay for the IV antibiotics since it is usually considered "experimental treatment". One of his patients is paying $10K+ a month for it. If that is my only recourse, I will just have to die...Which, at this point wouldn't be that undesirable to me...Yes, this stuff is causing me to feel just a tiny bit depressed...

Frizz, I am glad you wrote. I don't know if you read any of my posts, but my husband was diagnosed with ALS by a top neurologist last summer. He kept going downhill until we found a way to stop the progression of his symptoms. He is getting stronger and looks a lot healthier. He only used Doxy for a month but then switched to alternative methods of healing. It didn't cost us much so we feel blessed. He only went one time for the treatment that we think was the turning point in regaining his health and sees this doc once a month or so without charge. He wants to make sue my husband is doing okay. Before you spend a lot of money or totally give up, write to me and I can let you know the direction my husband took. Otherwise, maybe you could try some of the healing protocols members have tried on this site. There is a wealth of info. here. ALS is typically a quick death sentence so if my husband can get better then so can you.
Beth, I didn't know that Doxy is a poor choice for people with Neuro Lyme..isn't all Lyme neurological though? Is it just the degree of how much it affects people neurologically that they determine whether it is called Neuro Lyme or just Lyme? Mainstream doctors really don't know what they are doing. We get better advice from people who are not in the medical profession.....sigh.

@cat, doxy is just not a 'great' choice for neuro - especially at a low dose. It is effective but the percent saturation in the nervous tissue is poor. I forgot to throw in that minocycline which is in the same class is good for neuro lyme as well.

I don't necessarily know if all lyme is neurological or not. It really seems the more people that I talk to the more diverse it is. I feel like there have to be SOME people out there where neurologically they really aren't effected.

But for example while I was on doxy, the disease progressed and heart symtoms emerged on doxy. I had two drs including the cardiologist say that doxy isn't good for neuro and it was only after about a month on ceftin (I had been on doxy for 2 months prior w/ heart issues getting worse and worse) that my heart issues started to resolve.