Posted 9/20/2013 2:48 PM (GMT -5)
I went to an integrative medicine doctor and he did a dark field blood test and told me I have Lyme disease (At that time I didn't know anything about Lyme disease. I had heard of it but didn't now what it was.). Then when I was getting other tests done I told the nurses that I wanted to get a Lyme blood test done (it was on a list of blood tests that they do there, but not one that the doctor checked off that I needed). They kept telling me I don't really need to have it done but could if I wanted to, so I did. It was the CD57 test. The results came back negative. Then the doctor and the care manager said I don't have Lyme and keep saying they never told me I have Lyme disease. But they did tell me I have Lyme disease after I got the dark field test and even spent the appointment teaching me about what Lyme disease was. Now the care manager is saying that there is no way I could have Lyme disease because the CD57 is always accurate. I have read that Lyme tests can have false negatives but then the doctor's care manager is saying that the CD57 is never wrong. I am so confused. I have every symptom of Lyme disease except paralysis, so I don't understand why my doctor is completely dismissing the idea that I could have Lyme disease.
My main question is this: Is it true that the CD57 test is always 100% accurate?
(I don't really even know what the CD57 test is or how it works, by the way.)
I'm going to go to my general practitioner and ask to get a western blot test since I have read that that is the test most people with Lyme disease get to diagnose them. It would be great if I don't really have Lyme disease but I am pretty sure I do have it, so I want to get more tests to be sure if I have it or not.
Thank you for any replies.