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mri and lyme

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Posted 11/15/2013 10:17 AM (GMT -5)
Sorry to post another question so soon ... I was going to add it to my other post, but the topic is kind of different, so I thought another post may keep it less muddled...

I know I've read that lyme *can* show on an MRI, but would it *usually* show up? I guess what I am asking is whether a clear MRI would be a sign that lyme wasn't advanced?

Also a quick question on terminology ... the written report stated that no "definite" abnormalities were seen in grey/white matter. I asked a friend who had an mri before, and she asked her dh who is in the medical profession, and they said it sounded as though it was just the dr saying they didn't find what they were looking for. My mind went to thinking.... does 'definite' being in there mean they saw something that MAY have been an issue? I know I am over-thinking probably, but when I saw that for the menning(?) part they said NO abnormalities were found. The difference in terminology stuck out like a beacon on that for me. On one they say no abnormalities, the other no 'definite' abnormalities confused
Posted 11/15/2013 11:28 AM (GMT -5)
I don't have any definate answers for you, but I had an MRI of brain and spine, and mine was normal. I am CDC positive for Lyme with neurological issues(tremors, off balance, twitching, uncoordinated, ...), and have had it at least 15 years. It's definitely in my brain, yet nothing showed up. Not sure if it means it's not that "invaded"yet, or what, but either way, I'm late stage.

Sorry I couldn't be more help, hopefully others can answer better.
Posted 11/15/2013 2:24 PM (GMT -5)
I had lesions show up on my MRI's, but it's not something that will definitely happen, no matter how long you've been infected. It's as individual as whether or not you will have muscles twitches. And I've been reading that some researchers are saying they will resolve (go away) with time once you've finish a successful treatment for Lyme.

On the one that says no "definite" abnormalities, it could be just that they saw a shadow that couldn't be indentified as to if it was in your body or just a shadow that the MRI put on the film too.
Posted 11/15/2013 5:36 PM (GMT -5)
My MRI of the brain showed 'punctuate hyper intensities' which were translated by the radiologist, the ER doc, my neurosurgeon, and my neurologist as 'likely interference'. WRONG! It was not until 2 months later, when I saw my first LLMD, that I was officially diagnosed with Lyme by those words alone. He did order IgeneX which confirmed.
Posted 11/15/2013 5:39 PM (GMT -5)
I must add That I am grateful that it was only 2 months later that I was officially diagnosed..not years later, like some of members here.
Posted 11/15/2013 5:53 PM (GMT -5)
Wow! So I had to go look that up in order to understand what you were told!! LOL!

From what I could learn quickly - it's likely a vascular issue, which if this is true for you, we do know that Lyme disease has a way of changing the blood flow in the brain and that the symptoms that you are experiencing will correlate to the areas of the brain with less blood flow.

I do hope that this is all that is going on for you. Please be sure that your doc has this information - they are much better qualified to assess this than I could ever be. I was just sharing some thoughts and things that I've learned during my research for my own diseases.
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