just wanted to give a small update..please do not disregard who i saw as useless.
i have not been able to get to the llmd yet. still on cancellation list but waiting.
i saw a id doctor in my area which is a very high endemic area and had some really good reviews just to help me out for now.
she sat with me for an hour. i showed her my blood work for co infections etc. i had gone to her twice before once a year and she has treated short term combination of antibiotics.
i spilled out everything going on in my life. almost like a therapy appointment and she was so understanding. she listened to everything.
i explained the anxiety that came on and off since 19, the pituitary growth. she is very confident that the pit tumor is really causing alot of the issues. how high prolactin and low t can cause issues. plus that i have a big growth under my brain and how it can cause anxiety.
she realized i had lyme years ago and knows the circumstances that it can come back, the reliability of tests etc. she said she would treat long term but with everything going on and me having the anxiety issues that she would like to give it a little more time to get the growth and hormones a little more under control. she said that just because you have a high lyme antibody titer does not mean the body doesnt have it under control.
now heres the thing, she did not say it was not lyme, but offered to try to contact the llmd in hyde park to try to get me in sooner if i thought i direly needed treatment.
she believes that the anxiety is going to make me do bad things to myself if i dont get it under control. im 114 lbs and 5,6 male. she said i need to eat food and a good amount because im underweight. like she said i need to eat asap.
all the things going on can pull me into different directions. regardless she feels i will get better and live a happy life.
i do need to go to a therapist. i can go on and she did not dismiss any of what everyone has recommended but she did recommended that i use the forums a bit less because i am feeding my own nightmare and currently living it with what im doing to myself.
also explained that supplements and diet are good regardless if someone is sick or not. common sense though because i brought it up.
i just want to be ok! i need to control myself and believe even if it is lyme i can get rid of it.
any opinions? the symptoms all do overlap. Low t can cause muscle atrophy and muscle aches joint aches etc since its been low for over a year. Muscles twitches. i just dont want to be scared anymore.
Post Edited (dvlsfan30) : 1/14/2014 12:17:32 PM (GMT-7)