Brain Scan results not from Lyme per Internist

Sueg, my stomach turns whenever I hear of medical professionals who are blind to Lyme.

It is your life and you have to do whatever is within your means to heal and get better. If you suspect that you have Lyme and can afford to see an LLMD, then by all means don't let anyone discourage you.

Don't give up trying to get the help, the correct help, needed.

We know what's going on inside of our bodies, we know. Don't give up. No matter what the professionals (remember, they are just practising medicine) might say to you. They don't really know, so they have to say something that a will fit in their own minds.

We believe you. Follow your heart/gut, and don't give up.

I'm in the same boat, trying to locate a Dr that will treat the lyme/co. I have a positive IGeneX, but so far, the one llmd I saw, said I DON'T have lyme, but I am depressed. No, not depressed dear Dr., but I am frustrated. There is a difference.

Hang in there. We believe you!

Hi Sue,

Sorry to hear you are going through this. I think it is one of the hardest parts of this disease, to be told contradicting information constantly. It makes it very hard to pick a path for yourself. As many will tell you, with treatment with Lyme - you will most likely notice a difference. Either a herx or improvement and time will tell. For me, even though I had drs say it wasn't lyme - I knew AND I improved rapidly on treatment.

Since, I have had one doctor do a complete 180 and honestly believes that I did have lyme and that it was treated. She wasn't my favorite dr BUT she did care and when I got all better (which I did :) ), I went back in to show her. Granted I really wanted to say "I told you so" but I didn't. But it was very clear that she had gone back and looked at lyme disease. She probably won't treat it but she will be more open minded about other people that will present situations similar to mine.

Also...I collect old medical books. One from about 1910 states that according to the 'foremost expert' freckles were a parasitic fungus. The best cure was to rub mercury salt on your face.... Each industry and each generation has its own 'arrogance.' about 90% of what is in that book is still true today. Just try to use your best judgement and keep moving forward.

~beth

 

Oh they all say that! Either they say the lesions aren't the result of Lyme, or they say, they're perfectly normal, and that everyone has lesions. I hate neuros.

I have a Lyme friend whose neuro. thought she had a brain tumor, and she got all upset, when it turns out the lesion, or whatever it was, was caused by Lyme.

Margaret

My husband was first thought to have ALS in 2011 and officially diagnosed in 2012. Then we discovered he had Lyme through Igenex.. He was treated for Lyme and his ALS symptoms stopped progressing. When I started my research I read that Lyme mimics many autoimmune "diseases". Does that mean when you get tested for Lyme and the results are positive, that the individual doesn't actually have MS, ALS, Parkinsons, etc. ? That would be my understanding of mimicking something. On the other hand, does Lyme cause these autoimmune "diseases" so one actually has the chronic illness....or are they just symptoms with Lyme or another infection being the root cause? The latter is my belief except for a small percentage of people with familial causes and possibly other damage to the brain...I don't know. I think they attach names to so-called diseases to explain symptoms. Woud it be necessary to use semantics to explain different symptoms ie. ALS vs MS (The latter is sensory and the other is not) so one can differentiate between one or the other to explain what is going in the body and to be treated accordingly?
Is that necessary if the root cause is Lyme? Until the CDC changes it's stance and Chronic Lyme is recognized for what it is, not much will change in the medical industry.
Any thoughts on this?