Very bad week

I don't have any answer for you, but I'm sorry you've had such a tough week. There have been discussions on those topics, so you should hear from some people who have dealt with it. I hope you learn what you need to do to get past those problems.

pictureofhealth,

I'm so sorry that you aren't feeling well. about a year before FINALLY being diagnosed with Lyme, I was told by a cardiologist that I had POTS. I had fatigue, sinus tachycardia, palpitations, low blood pressure and lots of dizzy spells. This cardiologist said the exact cause of POTS was unknown and it is usually secondary to other illnesses. He wanted me to make sure that I changed my diet, included more salt, drank extra water. He didn't offer any medication for me.

My daughter was also diagnosed with POTS and sees a specialist at our local Children's Hospital. She takes atenolol daily for her heart rate and it has helped a great deal.

I went to see a naturopathic doctor to help me with the POTS and that's when Lyme was first suspected. As my cardiologist told me POTS is secondary to other illnesses, but he didn't mention Lyme.

I too have felt worse since starting antibiotics, and I have to admit that up until a mother of a herx last week, I hadn't been diligent about detoxing. It's something I have to work on, and I'm getting better. Part of why you feel so icky is because of the toxins in your system, partly from the Lyme, and partly because of the meds, and let's face it, your body is waging a war against the bacteria that is making you sick.

My naturopathic doc is constantly reminding me to take time for myself, whether it's to rest, pamper or just detox.

I really hope that you feel better. This disease is truly awful. I do find peace in the fact that there are other people who know exactly what I'm feeling, and that I can come here and talk about it.

Roxie60 I would love that link. I think my email is enabled.

MrsPallas, Do you find your POTS symptoms get worse while herxing and or on ABX? My Doc has me pulsing abx and feel worse on those days. Love my job teaching preschool but I'm up and down off the floor all day long, talk about dizzy. I'm glad you and your daughter are getting treatment, may you have a speedy recovery!

Lymebabe, Thanks for the kind words. I hope you find a treatment to rid these buggers.

PoH, your email says unavailable.

Email sent PoH.

I was not diagnosed with pots but I have lots of tachycardia. My resting heart rate is often 120, and I throw PVCs constantly. It will ramp up near 200 sometimes and I passed out and smashed my head about 4-5 days ago. My cardiologist put me on Labetelol which I haven't taken yet. I'm scared, my bp runs very low. I had an echo which showed nothing and my cardio said " well you have tachycardia and PVCs but I don't know why, the best I can do is put you on a beta blocker". So comforting, he told me to increase my salt I take and NOT to drink so much water but to drink Gatorade. Wth

Thanks Joyful01 I will ask my Dr about that med. She gave me a beta blocker propranolol, which worked for a few days...