I need a doctor!!

I just came home early from a meeting because I was weak, nauseous, and headachey. Not sure I would drive home OK, but no problem. I need to have some treatment here--and soon. I am still waiting to hear back from the LLMD for test results. But I have other symptoms daily and feel like I might have a stroke or heart attack while I am patiently waiting....

Do you guys think I should just go to my PCP tomorrow?

I'm sorry you feel so crappy. I looked back at your earlier posts, and in my "non-medical" opinion, it sure sounds like Lyme. I have all the same symptoms you do.

Is your PCP the same GP that said your tests were borderline? Did you ever get a copy of that test? Was it the Elisa or Western Blot?

I am thankful my PCP of 7 yrs did a Western Blot on me per my request, even though she didn't think I had Lyme. Imagine her surprise!

What part of the world do you live in? Sometimes there are doctors that will see you sooner and get you started on abx until you can find an LLMD.

I have an Infectious Disease dr. Bc I can't afford an LLMD. Thankfully they believe in Lyme, study Lyme and advocate for Lyme literacy in the area. They aren't as aggressive, but I at least feel like I am getting some help. Some rheumatologists are also knowledgeable about Lyme while you wait for a better dr.

Others may disagree, but as someone who has been sick with those symptoms for years, I jumped at the chance of getting treatment wherever I could find it.

I hope you get help soon.

Domyounhavevan appt with an LLMD?

Thanks for your answers--some good ideas!

Why didn't the LLMD give me an ABX 3 weeks ago? Or do they only do that when there is a rash or bite?

Ames 777-Sorry to hear you have same sx as me. I don't know if this looks more like LD or MS. And I will have to wait and speak to the Lyme doc about this. Do you have brain lesions also?
And yes, this is the PCP who said the test results were borderline on 2 bands on the Elisa and OK on the WB. So think it would be a waste of time to see him. I just feel like I am falling apart and need help soon. But he would not be the one! So that is a good point that I did not see. Here in Wisconsin I think the big clinic I go to would need to see a rash if I would go to their ID doc. They would only go by a rash or positive Lyme test--which is the very inaccurate one.Too bad-Because my insurance would cover that in the network but not a LLMD.

And Maine76- Yes, I saw the LLMD 3 weeks ago and he did the blood tests for Lyme and Co. but gave me no RX to start.(And I'm waiting for Igenex results)

thanks sueg, yes, I've heard that (read it too) and so we're sticking with the llmd for the treatment. The pediatrician and ID Dr. both said "3 weeks antibiotics will get rid of this."
I had no intention of listening to them on that one. I still haven't told pediatrician that we went with the llmd's advice and are continuing antibiotics until symptoms are gone (or past). I know technically I don't have to tell him, but he's a nice Dr. and it would be nice to have him filled in on our son's treatment plan, so that if we need to go to him for anything in the meantime I it isn't some secret from him. I hope he respects our decision and makes it easy to still work with him.

Thanks though Sueg for looking out for us!

Was told Ehrlichea is one of the common tic borne illnesses in Wisconsin.
Yeah... i don't get it...you can go into any pimple hut and get a dx of abx in 10 minutes but a idiotic dr. Takes blood 15 times and countless x rays ct scans and mri when they could just give a simple dose of abx and wait a week and see if symtoms get better...lol uhhg.. never even came to the mind of Dr's I went to for 2 years...

Try to get in there asap. If I was with you I'd rip them a new one. Sorry...but it's starting to get to me.

I don't agree with that protocol. I have spoken with some high profile lyme docs and they generally start treatment while waiting for results that take longer. I agree with concepts on ripping them a new one. I'd ask if he would wait if it were himself or his family...

concepts.... I laughed out loud at the term "pimple hut". :)

Lol..yeah...i just don't get why you can px of 200mg a day of zit extinguishing abx that doesn't hurt a thing other than looks, and only 100mg for something that is killing your insides. I just don't get it. It's dumb...

I didn't realize it was your llmd who would not px you abx...
Woah...I'm starting to get scared myself...
I'm counting on my llnp to give me what it takes to kill it..otherwise I'm wasting time waiting.

Concepts ~ my lyme literate ARNP, as well as my naturopath (the doc's I referred you to) are both battling lyme disease and coinfections personally. The ARNP took heavy doses of doxy for several months (maybe six months) last summer. I think she's now doing alternative supplements. But, because she herself recognizes the benefit of heavy doses of abx, I'm almost certain that she'd be willing to prescribe it to her patients. I don't have any first hand experience with it because I'm allergic to abx so, that's not an option for me. But, having a doc who's going through the same thing and knows that larger, long-term abx are beneficial will remove several stumbling blocks that you'd have with other docs who are not lyme literate.