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Posted 3/12/2014 1:23 PM (GMT -5)
I cannot handle it. I am so hot. When I do anything besides just sitting, I get waves of heat pulsing through my body. They get so intense and I'm afraid they are never going to stop. The only relief I get is when I go out in the cold or in a colder room.

These "heat waves" come at the same time every day. Why?? What the heck is causing it?

I went out shopping on lunch for my husband's birthday and I am drenched in sweat now. It's not good considering I have to go back to work and now smell like sweat.

This morning I woke up and my hair was wet! That's how much I sweated overnight.  I'm even thinking about chopping off my long hair because I just feel so gross all the time with this sweating.

I mean, anything causes me to get extremely hot. I was stapling papers at work at a reasonable pace and I thought I was going to die. My co-workers gave me paper fans to help me try to cool down.

And when I'm not sweating to death, I am freezing to death.

On another note, we got our infrared sauna yesterday. I sat in it for 10 minutes last night. I was anticipating these waves of heat but nothing happened! What the heck. I do feel a tad bit sore today so I think it did something.

Posted 3/12/2014 2:30 PM (GMT -5)
Are you being treated for Babesia?
Posted 3/12/2014 2:45 PM (GMT -5)
Have you taken your internal temperature when you feel this way? If not, I recommend that you do. This will help you and your doctor get a better diagnosis. Along with this hot feeling, do you get tremors or shakiness? have you experienced and loss of weight recently?

The next time that you feel like this, try licking on a hard candy and see if it helps. Two things that come to mind that could make you feel like this is your blood sugar level dropping. This is where the hard candy will tell you if this is the problem.

Another thing that can cause this is an impairment to your hormones. Taking your temperature at different times during the day can help diagnose this.

Another thing that can make someone feel like this is the diet. Some people with Lyme feel very hot and sweaty after they finish eating a meal. Being that you also experience this at night, it may not apply to you. Night sweats are experienced by people with a co-infection.
Posted 3/12/2014 3:18 PM (GMT -5)
achievinggrace,

No I am not being treated for Babs which is my major problem I have with my LLMD. Last appointment he said, "well when you first came here you clearly showed all signs of Babesia but you have no night sweats".

So what? Not having one symptoms means we don't treat it!? When I switched abx, I started getting the night sweats and now I get them almost every night. Not crazy sweats but the back of my shirt will be wet as well as down the front of it and my hair is always wet (I have long hair).

I think at this point, all my symptoms are one of the co-infections. I got bio-energetic testing done by a naturopath and he picked up Babesia, Ehrlichia, and mycoplasma in me. I firmly believe in his testing so I really don't think I have Bart. I think all my symptoms right now are Babs.

Healing98,

I have had drops in my blood sugar quickly. It seems to happen a lot when I switch abx. I get very disoriented and shaky when that happens. I do usually eat a small piece of candy to get it back up quickly. I've never gotten the low blood sugar while feeling hot though.

When I first got sick, this (getting super hot) was one of my first symptoms and I would take my temperature and it was usually 99.4. It has gotten up to 101, that was right at the beginning of the infection. My work kept sending me home thinking I had the flu or something. Now I don't bother taking it because I literally became obsessed with my temperature. I walked around with my thermometer all day pretty much.

But I can tell when I have a fever because my cheeks get flushed and my eyes get glassy. That used to happen at the beginning of the infection but not anymore. The skin all over my body does get very flushed though when this happens and my veins also get really bright blue.
Posted 3/12/2014 3:19 PM (GMT -5)
Also Healing98,

My weight has pretty much stayed the same since this all started.
Posted 3/12/2014 3:25 PM (GMT -5)
I'd think you don't need to use the sauna when you're already perspiring so much, since that's the main reason people use it. Some people use it to raise their core temperature.

I have the opposite problem, I don't sweat very easy. At least you're detoxing when you're sweating, but I can imagine how annoying it would be to have it so often and when your at work.
Posted 3/12/2014 4:33 PM (GMT -5)
are you sure you are not hyper thyroid?
Posted 3/12/2014 5:04 PM (GMT -5)
Yeah, me too, and it's awful!! I was once hyperthyroid to the point I had to have my thyroid taken out, and never felt heat like what you're describing. Now, I get terrible waves of heat, sweats, and sometimes chills. I absolutely hate it, and sometimes it keeps me awake all night.

Margaret
Posted 3/12/2014 5:05 PM (GMT -5)
PS, Sometimes I wake up in a pull of sweat with wet hair, but regardless, I do think the sauna might help. Just drink a lot and take salt tablets.

Margaret
Posted 3/13/2014 8:27 AM (GMT -5)
hmmm I am not sure about the hyper thyroid. I am hypo just barely. But I haven't had blood work in 6 months since I started abx for Lyme (ANOTHER issue I have with my LLMD).

But I was getting these waves of heat since the beginning of the infection and I DID have my thyroid checked a million times then and it was always normal (before I knew it was Lyme).
Posted 3/13/2014 9:27 AM (GMT -5)
I am not sure why you get so hot but here are a few suggestions: The hypothalamus controls body temperature, hunger, thirst, fatigue, sleep, and circadian rhythms. Can you relate to any of these other issues? Trouble sleeping?...always thirsty?

Because of your running temperature being slightly higher than what is considered "normal", you can check into your cortisol levels. The six point saliva test can tell if your cortisol drops or goes higher during the day (like around the time you get so hot). Look into licorice root to help with that. You say that you walk around with your thermometer. That is good. Chart your temperature and see if it varies from morning to night by more than a few tenths of a degree. That will tell you a lot.

Let's see what else? oh yeah, try adding salt to your water. You may have an iodine deficiency.

Since you have had your thyroid levels checked, maybe you should get a test for free T3, free T4, TSH, ACTH, TSI, Anti-TPO, Anti-TG antibodies and the 6 point saliva test for cortisol. One test may not tell you what is wrong but together as a group it will tell you if you have a deficiency.

By the way, do you take any multivitamins? If not, you should try it. Although not very potent, it may be enough to correct any slight deficiency in your minerals or vitamins to were you begin to see a slight improvement.

I almost forgot; test your iron levels. Too much iron can also make you feel this way.
Posted 3/13/2014 9:56 AM (GMT -5)
Healing,

You bring up a lot of good points. I'm not really fatigued and never have been with this disease. I don't have trouble sleeping.

My appetite changes. Sometimes I just don't feel like eating and other times I'm starving. I posted a recent post about feeling like I was starving to death no matter how much I ate. I feel like it was some kind of a herx though because it started after I began to take a lot of supplements. I backed off all of them and I no longer have that feeling so bad. I still have it sometimes though.

I will try the salt in my water. I do have sea salt I carry around in my purse (it's true!) so if I'm out somewhere, I don't need to use regular table salt.

I don't take any multivitamins. I have read that certain things "feed" Lyme so I didn't want to mess with that. I have some at home though so maybe I will start taking them.

I am worried about iron levels because I read that Babesia messes with that?
Posted 3/13/2014 9:48 PM (GMT -5)
For a while I too would start to sweat like crazy and soak my clothes soon after I would eat. Just like people get when they eat the hottest peppers. I read that when you eat, that your sugar level drops so I attributed it to that. It hasn't happened for a while now, so I don't know if it is because I started to take supplements or because of the antibiotics that I take now. Either way, I am glad I don't go through that any more.

As for supplementing with iron, there are two popular beliefs in taking iron, magnesium, manganese and other minerals that tick-born-infections (TBI) thrive on. One belief is to not take them and starve the bacteria. Others (like myself) believe that you should replace what the bacteria eats so that your body doesn't starve. I believe that the body has to be in harmony with itself. If there is an unbalance such as from a bacterial infection, the body and immune system will be too weak to defend itself. I am reading Dr. Jergan's book on Lyme and this point is made over and over again.

The impact of low magnesium, iodine, vitamin D, vitamin B 12, and iron among others to the body is very detrimental and I just don't see how we can heal or fight without supplementing.

I hope others can chime in and give you other ideas on what could be causing your symptoms.
Posted 3/13/2014 11:27 PM (GMT -5)
Elleon, I am so sorry to hear you are sweating like crazy. It drives me nuts! I have the same thing. Almost every night I sweat through at least two shirts and shorts, it's really annoying. Most of the day I am extremely cold, it's unbearable, I wear mountaineering gear all day. But once a day up to every few minutes, I get so hot I sweat enough to have to take all my clothes off and change again, then I get the chills again!
Healing 98, thank you so much for the variety of potential culprits. I think it might be blood sugar related too but I am definitely going to try your sugar trick to test. I have to immediately lie down if I eat carbs or sugar. It even happens with sugar from carrots and especially beets. I've had some tests but I really want to know how to eat a beet without falling asleep.
Posted 3/14/2014 8:59 AM (GMT -5)
It sounds like babesia. Can you talk your doctor about maybe treating for babesia to see what happens?
Posted 3/14/2014 9:21 AM (GMT -5)
Yes next appointment in a couple weeks I am goin to talk to him about treating for babs. We have to do something soon since rumor is the hubs is losing his job in June so there goes our insurance.
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