Hello everyone,
I have been feeling especially terrible the past week or so. It’s been nearly impossible to function because I am so weak. Even breathing is labored because my ab muscles are so weak. I am yet again awaiting tests which should be back by my appt this Tuesday. Doc is checking for some coinfectors, some other bacteria, a gene mutation of some kind and Lupus. I have been checked for Lupus before but it was months ago. I’ve pretty much convinced myself that I have Lupus at this point. One of the big things that leads me to this conclusion is my Erythromelalgia which is autoimmune. Of course all the other symptoms could be Lyme as well as Lupus since they are very similar. I don’t know. I seriously feel like I am going to die sometimes. I am not trying to be dramatic. I really feel like my body is completely shutting down sometimes. opening doors and going up stairs is becoming difficult. I am trying so hard to keep my job but it’s almost impossible for me to make it through a 40 hour week. Every part of my body hurts with the exception of my head strangely enough. My optic neuritis has good days and bad days..My appetite is shot. I’m just completely spent. Tuesday can’t come soon enough.