HealingWell
Search Close Search
☰

When are we officially finished?

Support Forums
>
Lyme Disease
✚ New Topic ✚ Reply
❬ ❬ Previous Thread |Next Thread ❭ ❭
Posted 4/16/2014 2:35 PM (GMT -5)
So anyone got any idea on what the finished line feels like?  I know we treat 2-3 months symptom free but how do we know when we are symptom free?

Because I feel almost symptom free, but I might be having some slight side effects that are from the medications.  So I am having a hard time to distinguish between them.  Still getting some minor inflammation from time to time. 

Also I'm concerned about relapses and what I can do to prevent them! 

Does anyone know what are the best drugs to be on to prevent relapses from occuring?  So far my list is Flagyl, Tinidazole, Plaquenil as the best 3, and I'm taking the best 2 of those 3.  Grapefruit seed extract I know is a good one which I am also taking.  I heard Teasel as well.  Banderol and Samento are helpful I think and so is serrapeptase. 

I figure I might as well take all the medicines that successfully prevent relapses to increase my chances. 

Posted 4/16/2014 5:27 PM (GMT -5)
You'll know. It will be pretty clear.

Oh, about the medication, I'm not sure.

Of course, when I stopped my meds, I got really sick again, so you're probably doing the right thing. I had a lot of success with Banderol, Samento, Hootenanny Tea (sorry--warped sense of humor) and the usual Malarone, etc. Teasel never helped.

Just don't double your doses!!!

Margaret
Posted 4/16/2014 5:41 PM (GMT -5)
What is wrong with double dosing?
Posted 4/16/2014 5:47 PM (GMT -5)
Ya I'm conerned that I am going to be symptom free, and then get that minor monthly flare up where my left eye rhythmically blinks like half a millimetre a couple times every second and then after making one month of progress on the 2-3 months symptom free I'll be back at day 0 again.

I like the hootenanny tea! I get confused how to pronounce it actually. I think either HOO-2-nI-ya or hoo-toon-ya. One of them I guess I'll to with hootenanny tea.
Posted 4/16/2014 8:05 PM (GMT -5)
I am in the same boat as you lymepicklte except I do know I am not yet symptom free but will be worried when that time comes. Is it going to be the lyme or just leftover inflammmation?
Posted 4/16/2014 8:07 PM (GMT -5)
Teasel root is excellent. I herxed for weeks every time I took it. I am still on it plus al complex I am starting tmrw. I will write about my most recent llmd appt on a new thread and the new meds my doc added yo the mix.
Posted 4/16/2014 8:19 PM (GMT -5)
Lymepickle do u try taking magnesium suppliments? They made my twitches go away
Posted 4/16/2014 8:41 PM (GMT -5)
Thanks for sharing Chapelle! Ya I have a bottle of teasel root extract sitting here so I think I'm going to take lots, I took it a few times but not consistently! If has lots of alcohol in it so I might need to mix it with some hot water and let it sit to evaporate off the alcohol or take it on tinidazole off days. I look forward to hearing about your new medications and your latest visit to your LLD.

I might be adding in A-L too! I want to test it out, and then I might take it when I am symptom free and going off of antibiotics.

Hi Tbrown, I take some magnesium supplements. But maybe I should take more and be consistent with it. The last time my eye was twitching like this was a month ago, but it was more intense. So I'm thinking the nerve got infected and it is just flare up time of the month. Maybe it is the last little bit of Lyme? I find I don't really get body muscle twitches anymore, just the eye one today.
Posted 4/16/2014 8:48 PM (GMT -5)
LymePickle you are finished when:

You are mold free and know how to stay mold free
Your hormones are where they should be at all times
You heavy metals and organic solvents have cleared out of your system
Your brain chemistry is normal
The levels of minerals and vitamins in your cells are where they should be
Your immune system is back in working order and fighting
You have addressed all genetic issues that may hinder your healing
Posted 4/16/2014 9:19 PM (GMT -5)
Hi Lymebabe. I think I am mold free? How can I tell. I got a live blood analysis and the only thing wrong with my blood from what I saw and what the lady saw was lots of inflammation but no blood biofilms or mold.

My hormones are good I feel like I did before, except I will admit my sleep hormones/chemicals like melatonin are low but that is because I take melatonin slow release as well as sleeping pills. I have been taking them since my early infection prevented me from sleeping.

Heavy metals? Yes I have heavy metals for sure. Lead and mercury are high. But I am taking garlic and chlorella which I hope will help otherwise I have to start chelating.

Levels of minerals and vitamins in my cells is easy, I took the energy enfusion and I was like back in function.

As for genetic issues... Like MHTFR or some detox mutation? I believe I have it but am not sure.

Thanks for letting me know about this! Yes I guess there are quite a few issues that remain you are right.
Posted 4/17/2014 7:08 PM (GMT -5)
I think I am finished. I am either at 99% symptom free or 100% symptom free but I am not really sure which one. Might just got the minor inflammation. My last symptoms were my eye twitches which was yesterday along with ringing in my right ear which lasted 15 seconds. I think I cleaned up the party pretty good but I'm going to do 8 more tinidazole pulses just to make sure all the stragglers are kicked out too. I would hate to have any of those sneaky germs remaining. And if 1 single symptom pops up it's back to having to do another 8 tinidazole pulses.

Anyways we have Good Friday tomorrow and I'm off work for the week. So I'm taking shots of teasel, banderol, A-Bart, Houttuynia, and samento to celebrate the weekend. I used to drink a few beers at this time but now I substituted my beers for an anti-microbial herbal therapy instead. I am enjoying the nice buzz from the small amount of alcohol in these potent herbal tinctures. It is truly a nice relaxing way to end the week.
Posted 4/17/2014 8:55 PM (GMT -5)
Mold can be found via a blood test
Posted 4/17/2014 10:36 PM (GMT -5)
Lymepickle - I love your "buzz" comment - LOL
I miss my wine and unfortunately I don't really get a buzz from the teasel root! But I have to admit, whenever my husband opens a beer, I have been stealing a few sips here and there......

so you started treating in November? wow. ok - I only started in February.
Posted 4/17/2014 10:41 PM (GMT -5)
Chapelle, I was sort of half treating on my own knowledge and research. Using minocycline, banderol and samento... So not sure if that counts although according to me Lyme Literate Doctors I was treating it pretty good on my own. Treatment with Lyme Literate Doctors was officially beginning of February, so same time as you.
Posted 4/17/2014 11:11 PM (GMT -5)
ok, well I started my self treatment at the beginning of February and started with my LLMD at the beginning of march - so we are a month off. hopefully that means I will be where you are in a month's time!! =)
✚ New Topic ✚ Reply