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Advice for LLND first appointment

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Lyme Disease
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Posted 5/28/2014 10:28 AM (GMT -5)
In a couple weeks, I will finally be seeing a LLND for Igenex testing. I feel like I'm going for a job interview - that how present myself determines the outcome....
So, keep in mind, this is a Canadian LLND - even though we are coming along with recognizing and treating Lyme, I don't think we're up to speed yet with the US.

I guess I'm getting defensive now when i go to the Docs and I tell them about my symptoms...I feel like they're thinking that I really don't have anything wrong with me - other than my shoulder/arm injury that apparently will get better with time.

So, do I just bring in a list and rattle off all my symptoms - or choose the top 10? or have it in chronological order - some have come and gone...do I mention those?

BTW - I look totally healthy - and I look real good on paper.
I don't have anything measurable that points to Lyme - no heart issues, nothing on brain MRI, no inflammation, no liver issues, no gut issues....

Is it a good idea to bring in my husband - he wants to sit in the appointment with me...he says in case it's going in the wrong direction, he can validate what I'm saying....

Why do I feel like I'm on trial and having to plead my case? This is soooo wrong.
Posted 5/28/2014 10:41 AM (GMT -5)
It is a good idea to write down all your symptoms and mark them as sometimes, often and current. The LLND may have their own check list, but it really helps to go over it when you aren't under pressure. It is too easy to forget symptoms.

It's wonderful that your husband is wanting to come as back up. It really helps to have the support and another pair of ears. You might be hit with a lot of information or get flustered trying to ask unexpected questions.

You might want to have a few questions prepared to make sure you cover everything. For example, what is the LLND's treatment plan, what do they suggest for support therapies, exercise. How long will they treat you (you are looking for an answer a long the lines of "past the resolution of symptoms).

I know I got myself all puffed up before my first appointment, thinking I would have to fight for treatment. The doctor was very matter of fact and understood completely what I was experiencing. What a relief. I hope you find it is the same for you.

Good luck! Hooray you are on your way!
Posted 5/28/2014 10:50 AM (GMT -5)
Thanks - those are great ideas!
Posted 5/28/2014 11:06 AM (GMT -5)
I printed this out and highlighted everything that applied to me. http://www.anapsid.org/cnd/diagnosis/comparison.html
Posted 5/28/2014 11:16 AM (GMT -5)
Lymelymie : That list is for CFS and Fibromyalgia -
Posted 5/28/2014 11:19 AM (GMT -5)
I'd say if your husband is behind you on this, then have him come along. He can deal with any nonsense that might come up so you don't have to get so stressed over it.
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