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Area in Head won't calm to sleep

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Posted 8/28/2014 2:32 PM (GMT -5)
It's like there's a force field around this one area of my head. It's near my left temple, makes my head have a heavy feeling. when I lie completely still for an hour or so I'll turn and an area near my ear feels super stiff. What the hell is going on? No one, and I mean, NO ONE can figure this out.

I take sleeping pills but they don't do anything now. I just have to lie there all night and if I get a couple hours sleep that's about it. Thoughts are not straight as well.

My NP is just as perplexed as anyone. I mistakenly took the worng supp that had NADH in it which is a HUGE no-no for neuro lyme people. We believe this may have let the lion out of the cage.

I'm going to see a top LLMD next. Blood work in a couple week and then her consult on October 3rd. She's supposed to be the best. I'm in NJ.

Any suggestions are welcome. Thank you.
Posted 8/28/2014 4:00 PM (GMT -5)
I have a lot of sleep issues as well April. Mind just races and won't slow down long enough to fall asleep. Once I do fall asleep, I don't stay there.

My sleep issues are due to having a co infection of babesia. I did finally get a little relief when the doc finally landed on the right combination of sleeping meds. I'd be sure to consult with the LLMD about being sure your tested/treated for Babesia if you haven't already.

Good luck getting some shut eye, I know it's maddening being awake all night.
Posted 8/28/2014 4:07 PM (GMT -5)
Thanks. It's possible I have both Bart and Babs per recent blood work. Please PM me and let me know what worked for you for sleep. My mind actually doesn't race at all and I'm not sure if any meds will work now as this area in my head seems immune to anything, even if I vape weed.

It's horrible and there's got to be someone out there with the same symptom. I can't be the only one!
Posted 8/28/2014 4:57 PM (GMT -5)
What helps me is to take 2 phosphatidyl serines in the a.m. with 1 rhodiola, and an aswaganda. Take another ashwaganda at bed time. Take melatonin 1 hour bf sleep.

All of that helps. I don't know about your head. That is mostly likely brain inflammation, and I've heard Jernigan's CNS formula helps, although it isn't helping me right now, but then, I've just gotten over viral meningitis.

Margaret
Posted 8/29/2014 8:12 AM (GMT -5)
April,

I ran the multitude of non-prescription meds to try to get some relief and couldn't find anything that would help. Given that I'm already taking several dozen prescriptions, I really didn't want to add more, but eventually after exhausting many other options, I caved. I'm now taking Valium an hour before bed and an Ambien when I lay down. This lets me get a solid 4 hours before I toss and turn through the rest of the evening. That 4 hours feels like heaven though after several years of only sleeping an hour or so at a time.

You will definitely want to talk to your LLMD about this and see how they recommend treating. Sleep issues are very common with lyme and co and your LLMD will have multiple tools in their toolbox to help you through it. I hope you get some relief quickly!!
Posted 8/29/2014 8:33 AM (GMT -5)
I just read something interesting about california poppy tincture and sleep. It seems to be a pain reliever in addition to helping insomnia. I haven't heard of anyone using it on here before though and I have not used it either but it might be worth looking into!
Posted 8/29/2014 9:31 AM (GMT -5)
I slept a good 10 hours prior to getting sick. I used to have to set the alarm clock and put it across the room. I would hit the snooze like 20 times and fall asleep after each time. Then I took a med and it stirred things up and I totally stopped sleeping. Now 9 months of insomnia, I sleep 5 hours and its glorious. But no matter what I do, I can't sleep past 5 am. Why?

Organic tart cherry juice at bedtime really works for me. It creates melatonin.
Posted 8/29/2014 10:22 AM (GMT -5)
I hope you are seeing the llmd in NJ that I see - I LOVE her and she has me and my husband feeling well.

Neurolyme is horrible but does get much better with proper treatment. Makes sure you are having no caffeine and have you tried magnesium supplements?

Lyme strips us of magnesium and it is a crucial mineral for sleep and muscle relaxation.
Posted 8/29/2014 11:22 AM (GMT -5)
Springsteen, I will be seeing Dr. F, is that yours?

Very little, if any caffeine most days.

Yes, taking Mag powder plus now my NP has me on an oil again.

Last night my body just crashed. Had to take a couple sleeping pills but I slept soundly from 12:45-ish to 9:15 which is huge. I was soooooo tired. Hopefully tonight will be better again. Taking it one hour/one day at a time. Everyone's replies on here have been so helpful. Thank you.
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