Advise please

The tests for the tick borne diseases rely on detecting your antibodies to the diseases. If your body is not producing those antibodies (very common because Lyme itself suppresses your immune system), they will not be detected and the result is a false negative.

The herxheimer reaction you had with the IV antibiotics is a strong indication that you could have Lyme. Your best next step would be to find a Lyme Literate Doctor who is associated with ILADS (not an infectious disease doctor). An LLMD will diagnose you according to your symptoms and history and not just relying on the flawed test.

I hope you get some answers soon.

Hi, i had the western blot and pcr i think it's called.

I do still have the results somewhere, when i find them i will post here..


Could my few iv's really make me symptom free for 2 years? i keep reading i usually take weeks if not months to see improvement, maybe it's something else rather than lyme?

Thanks

Yes, your doctor should have all of your medical details.

Yes, even a few IV's can bring down the bacterial load far enough to put it into a dormant state. When the body is then under enough stress - emotional, mental or physical - then the immune system is lowered and the bacteria becomes active again causing more symptoms.

You need to see an ILADS (International Lyme and Associated Diseases Association) trained LLMD (Lyme Literate Medical Doctor) - we can help you with that.

For information on finding a Lyme Literate Medical Doctor(LLMD) in your area, you can start a new thread titled something like:"Looking for LLMD/LLND in the _______ area." Although you will need to enable your email option in your profile in order to receive any recommendations, as we don't allow doctor's names and contact info to be posted on the forum for several reasons. You can enable your email option in your profile, under 'edit profile'. Be sure to click the submit button to actually save your preference.

You can email Stephanie at: stephanie@turnthecorner.org You can also go to: www.turnthecorner.org/ if you want to learn a little bit more about Lyme Disease.

You can also go to The Lyme Disease Association and search for LLMD's 3 times in a month. You have to register first. Here is the link: www.lymediseaseassociation.org/index.php?option=com_content&view=article&id=277&Itemid=74

You will want to find an ILADS (International Lyme And Associated Diseases Society) trained doctor, as ID Docs (Infectious Disease Doctors) believe Lyme is hard to catch and easy to treat, and don't believe in the reality of chronic Lyme. Go to the ILADS site to read the new (2014) Treatment guidelines to get you started on your Lyme journey.www.ilads.org/lyme/ILADS_Guidelines.pdf

If you haven't already, it would be helpful for you to start with reading through the thread at the top of the forum titled,"New to Lyme?...Start here!!", as it is packed full of important information, symptom lists (as Lyme rarely occurs by itself), helpful links and pdf's, how to detox when one has these infections, ​a list of questions that you can ask any doctor that you are seeking treatment from and so much more.