That sounds scary, Louise! The things we have to go through...it's nuts!
Someone mentioned on this forum once that we all should have nurses taking care of us...this disease is so horrendous! I've never really been a envious of rich people...but it certainly would be nice now to be able to afford personal care from an RN for 8 hours every day.
Just when you get sorta used to your symptoms...some new ones pop up! Now, I've got a sore spot on the back of my head...telling myself it's a swollen lymph node...trying to just chalk it up to lyme. It's slightly swollen...of course I've thought about
lots of other things it could be.
I hope this doesn't happen to you again.