I bought GSE at the local health food store but am only taking it a couple times a week - it tastes horrible.
I've put the cyst busting on the back burner for now.

I am starting ceftin in a few days. Am also placing an order with Woodland Essence for sida acuta and cryptolepis - my LLND wants me to start attacking bart but since I'm switching to ceftin we don't want to add rifampin at the same time. Even though the cryptolepis isn't part of Buhner protocol for bart, my LLND says it's good for all the infections.

I am also debating whether a cyst buster is always necessary. I know a few people who never added one and have healed - one totally and the other is 80% better.

I may near end of treatment take a week off at a time - this may allow the lyme to come out of cyst form....

Jackie Moon - If your doctor didn't explain to you that this is a side effect that could become a serious issue then I would be a little concerned about his/her knowledge. It doesn't mean it will happen to everyone, but it is a weel known side effect. This is straight from Drugs.com:

Nervous system side effects have included weakness/fatigue/malaise (2.1% following 2 g single dose and 1.1% following multi-day dosing), dizziness (1.1% following 2 g single dose and 0.5% following multi-day dosing), convulsions, transient peripheral neuropathy (including numbness and paresthesia), vertigo, ataxia, giddiness, insomnia, and drowsiness.

My llmd explained this and told me to take a strong B-complex vitamin. I stopped when I had a lot of numbness in my extremities, but I will go back on it again.

I am reading Horowitz's book and he just LOVES Flagyl!!

However, he reports that herxes in some patients were so severe that they needed to stop the drug intermittently to let the herxes die down a bit.

Dr. H prescribes 50mg B6 TID for patients taking Flagyl to try and keep down any "untoward" side effects.

He reports "astonishing" results with it. He writes "Patients that had fatigue, headaches, joint and muscle pain, tingling and numbness, cognitive deficits with memory and concentration problems showed quick improvement, and over time more and more of their symptoms improved".

He also mentions difficulties in sorting through the neuropathy that can happen as a result of taking it....and I'm with happyjo when wondering how would we know what's going on since I, too, have neuropathy?

I have a friend who received delayed treatment for Lyme and was on IV meds for 2.5 years. She said it was virtually impossible to sort through symptoms...she didn't know if those she'd experienced were the Lyme...or the treatment.

I'm thinking there comes a point when symptoms finally lessen....and, ultimately end (yay!!)

I've read enough to know that the cyst forms don't cause symptoms and that concerns me.

My LLMD mentioned GSE for use as an anti-fungal when I asked about being started on one.

I like the fact that Horowitz says GSE is an effective cyst buster.

Question of the day:

Does anyone know of a brand that's not contaminated??? And what dose might be appropriate??


(hope you don't mind me posting this here, Girlie....it somehow seems related...)