I haven't posted in a while, so I figured I'd send an update. I still haven't gotten to see my LLMD, my appointment is in one month. But, my ID doc is amazing and has had me on a picc of Rocephin for five weeks so far and is way more receptive than I thought she would be.

Definitely she's perfect while I'm waiting. I am starting to feel better, but I'm feeling like I have a long way to go. Luckily, I've been managing to make it to work every day just fine. Just had a small time where my liver enzymes went too high and we had to lower my dosage.

I've been trying to stay super positive, and you guys help just by reading your posts! But, I'm so frustrated! I keep getting a new diagnosis of something at every doctor's appointment that I go to. Some of these things I've been dealing with since birth and had absolutely no clue. How did I make it 31 years and not know I had epilepsy? It really explains a lot, but still.

My brain has a lot of white spots that I see is common with Lyme, and my EBV and CMV have re-emerged. So far, they cannot detect any co-infections, but we all know how reliable the blood testing is for that. That's all for now. Love you guys, I don't post a lot, but I'm here!

For me, definitely the EBV makes me super fatigued. It seemed way worse when it happened at 15 and 17. But I caught a nasty cold and all my glands swelled up with it and the doc said my cold was worsened by the EBV. I actually ran a fever of 101 as well. I haven't achieved a fever in a long time.