I feel like I am going crazy

Hello,

I am new to the forum and I hope to find some answers. I am 35 years old and I was perfectly fine until July. From one day to the other I got so sick. It all started with a headache that lasted 4 weeks all day every day, it felt like someone put a belt around my head and pulled on it. My brain seemed to be all foggy and sometimes I would read something without having any idea what I just read. In addition to hat I had vision problems on my right eye and my legs and arms felt so shaky and weak. Accompanied by muscle pain. After weeks my headache stopped and the weakness got better but other things kicked in, like muscle twitching, joint pain, sore throat, anxiety and for some reason I started shivering and then I felt like my head is super hot. Some days a tend to have a low grade fever others my body temperature is super low. Mu newest addition of symptoms is that my right heel feels like I have a vibrating cell phone attached to it non stop. Some days my skin feels like it is on fire, other days I feel numbness or sharp pain. IT is so weird as my symptoms shift all the time
And for several days I have a difficulty in breathing and sometimes in swallowing, I am not even sure if this is anxiety now or if it a symptom. I am so freaked out, as I am a mom of two kids and so many days I feel like I can't get anything done. I have this fatigue and lack of energy. I went to my family doctor and they did a CT can of the brain and also an MRI of the brain. Both without any result. They sent me to the neurologist, he did an EEG without any result. Everything seems to be fine. I requested a Lyme test, which came back Negative. It was the ELISA my result was 0.14 , so not even close to a positive. I am from Germany where Lyme is very common in ticks and as a pet owner and someone who loves the outdoors I had several ticks in my life. I cannot remember a rash after a bite. This twitching and vibrating is driving me nuts. Every day I have something else. I begged my doctor for a western blot test which finally got done, but I haven't gotten the results yet. In those weeks of being sick I had 3-4 days when I felt perfectly fine and I was so happy because I thought this nightmare is over... but of course it started all over again.
I am so worried, because I have not diagnosis and I feel like my doctor doesn't take me serious. Do my symptoms sound like they might be caused by lyme, or should I just accept the negative lyme test?

Thank you so much for reading this

Sonne

It sounds like Lyme to me. I don't think there is much that Lyme cant do. Any tick bites you remember?

Me too. Lots of ticks my whole life. One did turn into a bullseye and I'm still having trouble getting treatment. That one was 7 years ago.

It's like night and day. Totally opposite. What has your doctor said so far? You got a negative western blot or...?

Hi Sonne,
Welcome to our community! Do you wish to have a private doc or pursue treatment through the military doctors? You answer will help determine which links I suggest.

​ If you haven't already, it would be helpful for you to start with reading through the thread at the top of the forum titled,"New to Lyme?...Start here!!", as it is packed full of important information, symptom lists (as Lyme rarely occurs by itself), helpful links and pdf's, how to detox when one has these infections, ​a list of questions that you can ask any doctor that you are seeking treatment from and so much more.

When you get your results back from the Western Blot, please get a copy and post your results here. We can help you understand your results. And no matter whether it comes back as positive or negative, don't despair! A negative test result only means that your body isn't producing enough antibodies to get a positive test, not that you don't have Lyme. These tests are only designed to test for antibodies to the bacteria, not the bacteria itself. Lyme (especially when combined with Bartonella) is well known to suppress the immune reaction. That is why even the CDC - on it's web page- still says that diagnosis is to be based on clinical signs (symptoms) and backed up with tests.

Hang in there! We are here to help you get through this and to help you learn all you can about this and how to heal!

I am in Killeen Texas, it is somewhat close to Austin, but as far as finding an LLMD I had no luck yet. All my testing so far has been done through the military and Tricare, but I will definately invest the money to send my blood the Lab in Cali and also I would even pay out of pocket to see an LLMD.
The past three months have been a nightmare. I am trying to keep it together for my kids but some days it is just so hard to function at all. I have such a hard time concentrating and helping my older child with the homework. My hands always feel shaky and it is so hard for me to smile and pretend everything is ok. I know I have to - for my children I don't want them to see me cry. I am just beyond scared with all my symptoms. The other day I really felt like my heart skips beats and rumbles... At the doctor they just told me, you know you have a heart murmur right? No I did not know, as far as I know I was super healthy and now? Today my right legs hurt so much I can't even walk right... I really feel like I can't deal with this much longer

I want to thank you all for welcoming in your forum. It feels like I can actually openly talk about my sorrows and sickness without being judged or told I am just depressed.

Thanks so much

My hope is that you both will feel comfortable enough to openly talk about dealing with these infections, not only with us, but your family one day as well. They need to know the dangers of having these infections and what it can do to a person's life as well.

Sonne - if you would send me an email, I have some information on some LLMD's in Texas that I would be happy to share with you. You can send me an email by clicking on my screen name or the blue envelop under my screen name. Please be sure to also include the area that you would like to find the LLMD in the email as well - my memory isn't good enough to remember everyone's details.