I feel pretty good… I feel almost like I felt before I got ill. I do have moments of no symptoms at all.

My lingering issues are: I have a few eye floaters, in my left eye I have this pretty long squiggle floater. I have lines on my finger tips that are horizontal and vertical. My LLMD said Lyme can cause some permanent damage, and he thinks that these 2 things are more along the lines of infection damage. Kind of like a scar.

I occasionally get the odd tingle in random places in my body, and the odd muscle fasillation. They are quite mild, but for those I attribute to active infection as the abx quickly suppress those symptoms.

The foot pain and bart symptoms were almost completely gone… But came back a tiny bit today.

Lyme is not cleared from me…. For Lyme I get the very odd and rare ache in my neck ( back of neck in spine, upper back area). This might only come once a week or less often. I have very minor jaw aches occasionally. Again these are very mild symptoms and are hard to notice, but I am paying attention to my body and these symptoms are still active, they respond to abx which means something right there. I also got the occasional brain tingle. So I still do get symptoms but they are very minor. My cognition and energy levels are about the way they were before this infection though.

My LLMD also suggested I go on NT factor for 6 months to help repair cells and mitochondria that have been damaged.

Post Edited (LymePickle) : 10/22/2014 7:15:21 PM (GMT-6)

Hi Revive, thanks! Yes I like the idea of pulsing too… Daily abx I am feeling like I need to take a break and need to pulse now

I hope I will be a success story. I'm keeping my fingers crossed! One thing I will say, is it definitely has not been easy with this illness. But I'm going to keep fighting, and I still have a goal of a 100% recovery.

Glad to hear you are SO much better! Keep it up and the pulsing sounds great. Plan to ask about that for my son. He's finally up to 400mg doxy / day. It's a long road.... stay strong

Girlie- Ya I hope it works!  To be honest I don't think I like Dr. C's approach.  He is suggesting I stop antibiotics completely, let it come back.  AND THEN hit it hard with abx.  Umm... Ya, and then have a massive herx again?  After all I have been through?

Fronton, I have been on antibiotics for 11 months now.

 

I hope this is the final kick to get you back to yourself, LP!! Best of luck with it! And congrats for getting this far!!

LP - Dr. C. didn't want to give you more abx? None? Or not a large amount? (Doesn't want you stockpiling them?)
I have kept all my leftovers...got about 10 days doxy, 10 days zithro, and a lot of ammox and biaxin.

He gave me a refill on my ammox and biaxin...even though I have more than enough to get me to my next appt. I chuckled and said..."Well, that's okay, as I'm thinking of giving my husband a round of abx as a challenge...to see if he herxes ....as I'm suspecting lyme disease for him". Dr. C's response was, "You can do that secretly - don't tell me".
So, he just doesn't want it "out there" that he's prescribing more antibiotics than needed...I think...and what I do with them ...ie: do a challenge for my hubby...isn't his business...he just doesn't want to know about it.
I think he has concerns about prescribing abx long-term - he's probably got some concerns about being investigated..and if that happens.. I will have no one to get them from. Seattle is a long way to go every 4 weeks.

Ya I told Dr.C I was already getting mild symptoms like an odd tingle in a random place and the muscle nerves were showing signs of infection too. He is saying I should be able to go 3 months with no return in symptoms.

Girlie... NT factor helps heal the cells after the onslaught of lyme and co, and the damage left behind by ABX. In my opinion it works well... It has all the fats and stuff necessary for cell repair and mitochondria repair.

But based on what I know about it... It is better to use it at the end of the treatment, and or when you are finished ABX.

I have a full container of it unopened, I already took one full containers worth. But my plan was to wait until treatment is finished before taking it. But Dr.R said it also helps heal the immune system, so maybe it is worthwhile to start it now.

Yup - the way they're handling Ebola - it may be sooner than we think.

Best of luck to you LimePickle!

I've read a bunch of Dr. Burrascano's writings and he said if Lyme doesn't come back after 3 months, it never will.

He mentions NT factor in the 16th edition of "Managing Lyme Disease" (Oct 2008) and listed it as part of the basic daily regimen for supplements. In italics he says "It is the single most reliable agent I have found that can give noticeably increased energy levels." I found the other facts he shared about NT-factor to be quite encouraging as well:

http://www.lymenet.org/BurrGuide200810.pdf


Um, I hoard my thyroid hormone replacement meds and just added my leftover amoxicillin ;)