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Does anyone feel frustrared when people complain of simple first world problems.

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Posted 10/30/2014 4:33 PM (GMT -5)
I try not to let this get to me, but I have had so many people compare getting catcalled on the street, having a bad teacher, a bad job, etc.. to these diseases. It really frustrates the heck out of me. I would do anything to have one of those problems to go back to my normal health. People seriously don't realize what they have...


I feel like we all got sent to hell for no reason, we didn't even bring this upon ourselves, it came to us.

How do you guys feel about this? Sometimes I have trouble containing and I go off on people verbally, and it has caused me to lose my girlfriend and some friends. Lyme and co-infections seriously effect every little aspect of your life sad
Posted 10/30/2014 4:58 PM (GMT -5)
Oh hell yea I hate that, my brother and friends do that all the time, it's always "I want people to like me, I want a good job, I want high social status, I have too much homework, I want to make a lot of money, I'm worried that my major won't work out, I want a new car, I'm dissatisfied with the way I look".


All shallow problems, I wanna just tell the to shut the hell up and go through what I went through the passed year and all those worries will go away and you'll WISH you had those worries back lol.


I wanna tell them like at least you don't feel out of your mind all the time and fatigued and weak and scared cause you don't know what is gonna come of your health. although I like my friends and my brother I think that they probably would not be able to handle this whole ordeal to be honest, and before this I was complaining just like them, then I realized there is more to life than shallow stuff like that.
Posted 10/30/2014 5:04 PM (GMT -5)
People just don't understand chronic illness until they go through something. They have a right to complain about what is off with their lives since it impacts them. It's not as bad as Lyme of course, but it is a problem in their lives, impacting them in a negative way too. I know they can get past it easier, but we just need to respect the fact that they haven't gone through anything as difficult and have no idea how hard it can be. No need to scare people out of your life just because their complaints don't carry as much weight.
Posted 10/30/2014 5:38 PM (GMT -5)
You just vent, ***** and tell us what you need to get off your chest. Dont' worry about 'scaring people our of your life' especially if you might be dealing with say, Bart? This is too much for anyone to deal with, especially when it's all so new and dibilitating.

This is a safe place, to vent and to complain. Dont' concern yourself about what others think or say. Especially when you're just needing to let off steam. At times I've been corrected on this site for stating something real to me, something that hurt, and then I get these posts from someone negating what I'm trying to do....VENT AND BE HEARD, I was devistated. f I could 'handle this' then I wouldn't be here. I bet others feel that way, too.

At times like that, I don't need someone 'correcting me,' but to hear me and say, darn, that sucks. I hear you.

So, you two just vent away. It DOES SUCK BIG TIME that others who are healthy are *****ing about such stupid, *** kind of stuff, while we are losing so much to these illnesses and what they do to us. And, you are right when you say, we didn't ask for this.

I hear you, and I get it. I won't state the obvious, that this sucks, but you go ahead, and vent away.
Posted 10/30/2014 8:46 PM (GMT -5)
I am a newbie but really agree with u! I am so tired of people saying I have a cold or I have to take a second dose of antibiotics let me get out my violin.

I say well wouldu like to have sensitivities to all but 5 foods, shaking uncontrollably, sixteen different infections in last few years (and those are only ones the dr was smart enough to identify), 7 root canals, 7 tooth infections etc. they look at u like u r crazy. And say have u been to the dr? I say yes and studied about disease enough (in addition to doing my job) to have several medical degrees. no doubt I know more about nutrition and infections than mostof my physicians..

I know that was obnoxious but I feel so much better Thanks!!
Posted 10/31/2014 11:46 PM (GMT -5)
I totally understand your frustration and irritation about people complaining about what is 'trivial' to us.

But I try not to get irritated about it cause that is totally eating away what's left (ahum) of my energy.
It's what they experience as being disturbing in their world.
I'm not reacting to their complaining, but that is a personal choice, I ignore it, let them vent away, even if it is about something I consider to be trivial if it happened in my world.
I don't react because I think about how I feel when someone says to me 'you know, there are people that are really much worse off than you, imagine being in a war zone, being an orphin in a third world country or something similar to that'.
... it's all about perspective...

I just let them vent away because that is what they need at that moment, just like us, we need to vent (I do, on a regular basis tongue on this forum, cause people on here get what I mean).
Whenever I can not take it, I leave the situation, just to protect myself.
Posted 11/1/2014 2:25 PM (GMT -5)
I think we do need to be very careful to not measure our misery against anyone else's - is this a safe place to come and vent? Yes! And by all means do so, but understand that when a person complains, it's because it's the worst they have dealt with and lucky for them it's not been something that can be life altering. If we begin to 'rate' our suffering against what others feel is their suffering, where does it end?

Imagine growing up with these infections. Imagine being shuffled from one doc to the next for 40 yrs without any relief. Imagine having every single symptom on the Master Symptom List for Lyme, and the symptoms of Bartonella, Babesia, RMSF and more all at once - for many, many years with no help available. Imagine a well respect LLMD telling you that you have all of the tick-borne infections. Imagine being one of the first to use herbs to heal and being made fun of and being told that it would never work - over and over again. This is a tidbit of my life - so I refuse to compare what's bad and what's not, whether the person has had Lyme or not. Bad is bad for all of us - whether we have Lyme or not. Thank God - or whoever - that not everyone in this world knows the misery that these infections can bring on.

I know of a person that had cancer as a teen and then Lyme and company and now - another infection of a different sort that must be treated before they can even think of treating Lyme & company! Now that would be hard to deal with!!

Bad is bad - there are no scales when it hurts.

People can't even begin to understand what many of us live with each day - how could they? This is like something out of a horror show - but if we let it get under our skin, we will always feel beat up, taken advantage of (by the infections/life) and feel like nothing in life is fair. What we have to do is find our way out of this - and that's not by telling others that their pain/troubles/issues aren't real. Everyone has a right to be heard.

So temper your reactions out in the world and come here to vent - or you can find another person with Lyme that you can email with and be Lyme buddies - that way you can vent all you need to and have the understanding that is necessary to have perspective on how bad these infections can be to deal with. I have a Lyme buddy - actually I have a few of them!!
Posted 11/1/2014 9:46 PM (GMT -5)
I think when people tell us about their problems when they don't really understand ours, they're probably just trying to empathize with us and let us know that they know how we're feeling in some respect,

even if they really understand that they aren't close to the magnitude of the struggle we go through on a day-2-day basis.

What gets me is when you can tell they're saying that they got problems too, and you can tell they're trivializing ours cuz they buy into the CDC and IDSA BS.
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