I will be starting Tindamax in a few days. My LLND wants me to take it 2 days a week - any two days...and it can even be different days each week.

I am on Ceftin - 500 mg x 2
I just restarted biaxin today (after about a 10 day break).

So, I will wait a few days and see if biaxin brings back my rash.

I have been taking a couple days off antibiotics every week or so.

Question: Is it better to take the Tindamax when I'm breaking from my other antibiotics? Or should I be taking it on the same days I take the others?

My LLND is flexible/easy-going (to put a positive "spin" on it...lol)

LP - re: Tindamax - I didn't know it had to be compounded in Canada. I haven't gone to the Pharmacy to pick it up. We do have a compounding pharmacist here, though, and there's also one close to Dr. C's office.

Hmmm..I wonder what's up with that.

So, how did you get it LP?

I got it from a compounding pharmacy in Vancouver that does mail orders. And they sent it to me. (Best not to mention just in case lol).

But it is not sold as tindimax. That is a brand tablet in the states. I got powdered tinidAzole in capsule form.

So, it's sold as Fasygin in Canada. Would it be identical to the Tinidazole?

Is it the same as taking Ceftin here - but Omnicef in the U.S.?

I should have told Dr. C. that we have a compounding pharmacist here in my city.
I know when I saw him in August, he had me go to the compounder near his office to get my Probenicid.

I guess I can ask the Pharmacist if Fasygin is the same as Tinidazole.

Dr. C.'s receptionist said the prescription was sent to the Pharmacy in my city...but they can't fill it.
So, she is resending it to our compounding pharmacy.

I don't know if our compoundimg pharmacy does all meds...so hoping they can fill it.

It's compounded and sold as tinidazole.

Ceftin and omnicef are not the same drug. Ceftin is cefuroxime and is the only 2nd generation cephalosporin that crosses into the brain and is effective for lyme. Omnicef is cefdinir and is a 3rd generation cephalosporin only available in the US.

Courtney - He prescribed 500 twice daily. I haven't looked it up to see if that's a high dose...or?

So, the Tinidazole presc. has been sent to the compounding pharmacy in my city, and I spoke to the pharmacist and she said it would be ready in a few days...they have to order it in first.

So maybe I should take it with the others...and then when I do break for a couple days off my ceftin/biaxin, I will have a total break from antibiotics, otherwise I will be taking meds every day..and i do like the break when I can load up on probiotics, and detox without any crap in my body.

Thanks Courtney!
I do tend to complain, criticize my LLND on occasion...but I'm a "nit-picky" kinda gal I guess.
These are my complaints:
I don't understand why a ND wouldn't be emphasizing the detox.
He also didn't feel it was necessary for me to test for mthfr genetic issue...or mold...or heavy metals.
Maybe his decision was based on my response to meds...don't really know.
He prescribes full dose...boom...no ramping up.

But, what I do like:
Until now (after he's been treating me for 5 months), he has only prescribed two abx .... never three. But, even now the third one he's prescribing is only two days a week. And, to be honest...three every day would worry me. I sometimes 'feel' toxic just on the two. And, we all know how well Chapelle is doing - she was only on two at a time.
I tell him stuff after the fact - and he never gets ticked off that I didn't check with him first. I told him a couple months ago that when I'm herxing I now take a two or three day break - no abx...instead of lowering my dose...and he said that was fine.
He suggested a few months ago that I go on Tindamax for cysts...and I told him I was wary...so he said to try GSE if I wanted instead. He never pushed the Tindamax. That GSE stuff is nasty!
When he changes my meds...even though he says full dose on Day 1...I don't do that. I start half dose...and tell him a month later that's what I did. He's okay with that.

I do believe I am getting better. I just feel like I am 'stronger' (not muscles...but just me as a person)...and I am feeling more confident. I think that must mean something...(that's what I keep telling myself anyway...lol)
It's just hard because when you have 30 symptoms...and even 10 of them have improved...if one of the leftover ones is a horrible one...it's sometimes difficult to see the progress...if that makes any sense. I have two or three that are still pretty awful at times...so it clouds my thinking.
That's my story...and I'm stickin' to it.

I agree Girlie, I thought that with my doc too about the ramping up part. He gave me 3 abx all at once start taking all at once and I actually ended up having to refrain from treatment for a bit because of the INSANE HERX that I had. I mean it put me down for the count :-/ He also never mentioned anything about probiotics (I asked him) or about detoxing either! I have always thought he should at least give out a pamphlet or something! But your right about the "trial and error" and not being any "magic bullet" and doctors are human as well. Lyme is so complex as it is, I guess we just leave the treatment part up to them and we're expected to figure out the rest. It sucks though because some people solely depend on their doctor to write the scripts and tell them EVERYTHIING they are supposed to do like the old 'drink lots of fluids and OJ and get lots of rest' like when we used to go to docs for a cold and such. I feel bad for those people who think they can soley depend on their doctor with lyme disease/co's because theres so much more than just taking the meds to get well with this illness.

I remember the Girlie who had tons of good questions that would always pop in the forum around almost this time last year and recently I chuckled to myself reading one of your posts because you now
*have the answers* and was all talking about "Macrolides" and all kinds of stuff! This time last year, you wouldve said "what in the world is a macrolide" lol ;-) You go girl!

We are not there yet, but are on our way. It just isnt QUICK enough with this darn illness but you and I both know patience is key. I am def in a better place than I was when I joined this forum (*No jinx! & knocks on wood*) and I know that you have recently mentioned you are as well. We just gotta keep "riding the waves" until we get there is how I look at it....

But just from reading your posts where you and LP would discuss your doc, it seems the meds your LLND has rotated you on have been pretty on point in my opinion.

Also, youre right..."one of them will work"! Theres been so many success stories where there has been a "breakthrough" antibiotic for some. People saying that when they took one of the abx Flagyl, Tindamax, Zithromax, Doxy , etc....whatever specific one is when they had a *turnaround*. I believe its the combo of meds throughout treatment, but def about getting the *right* ones to target the *right infections* and while the infections are susceptible at being killed is also important.

Also, I know!.... Chapelle didnt even use Tindy or Flagyl either!! I think she said she tried the GSE but it gave her headaches and she stopped due to the toxicity of. Im so feeling that way lately.... Too many abx is just too hard on the body and the long term effects of Tindy/Flagyl are pretty scary. Its so good that you are pulsing the Tindy :)

Omgosh and the way Canada is..smh....I am glad you have an ND to treat you also!!

Well hopefully your having less supermarket incidents lately at least...that would be a good sign also! ;-) (I believe it was your purse the last time)
But we surely wont judge ya if you do have an incident either )


{Hugs}Courtney