Sharing what I've learned about Vit D testing

Hi folks!

I think many of us are aware of the importance of appropriate Vitamin D levels.

It was back in 2008 that I had my first Vit D test. My level was great back then but, as hypothyroidism set it, I had to start supplementing in order to maintain the Vitamin D Council recommended level of 50-70.

I recently became aware of the fact that the most common Vit D test we get in the doctor's office (25-OH) actually measures our inactive Vit D level.

The test to measure active Vit D is the 1,25 di-OH.

I asked my regular doctor to check that level as well and I was horrified to discover that my level is VERY high - 187.5 (10.0 - 75.0)

It seems my Lyme is to blame for this.....and it seems that my healing is impeded as a result.

https://chronicillnessrecovery.org/index.php?option=com_content&view=article&id=176

Guess I can save a little money with my supplements now since I will no longer take Vit D until after I heal from Lyme :)

I'm a little bummed that my LLMD didn't address this topic with me. I plan on discussing it with him when I see him next week. Even though I'm very happy with his care and trust him more than any other doctor I've seen, I still double-check everything ;)

I'll have to look over my blood test to see what is tested. Thanks!

It seems the Vit D issue can be a double-edged sword for us Lymies.

I realized this when researching more today. In fact, I started a thread about my quandary (decent inactive level ala supplementation but very much over-range active level).

There's some good information being exchanged on there:

https://www.healingwell.com/community/default.aspx?f=30&m=3312622

Soon after my symptoms started I had my VitD tested and it was low even though I had been supplementing with 4000 iu's daily for a couple months prior.

I retested two months later and I was in range.

Here in BC Canada the test they do is the 1,25 di-OH.

Im thinking of testing again.

Should I be getting the inactive test too?