Your very first symptoms?

Quick background: My soon-to-be-wife has neuro lyme. We've been together 9 months, we are a same-sex couple. I have always had a crappy memory, but lately I feel very spacey/foggy and extra forgetful. I also feel like my knees are wobbly, as if they could fail me when I walk, yet they don't.

Yesterday at her LLMD appointment, I brought up sexual transmission. There is some info on the internet and in forums, but it just doesn't seem that conclusive. So I wanted to hear it from him. He said I can absolutely get it and to get Igenex and CD57 tests. Which I will do next week.

But, I'm wondering, is this possibly stress or psychosomatic? It seems like anything can cause brain fog or memory issues these days. I had labwork done last week and everything is normal, except for VitD, which was low. Thyroid, folate, B-12, etc, all good.

What was your VERY first lyme symptoms?

For me my first symptoms where fatigue, stiffness and joint problems. Also got a fever and felt really sick for a day or two until the antibiotics kicked in. I've heard that some think it may be sexually transmitted but I didn't think there was conclusive data on it, though it is a definite possibility. If it is mostly mental symptoms I would think that it definitely could be psychosomatic. If there was obvious physical symptoms then I'd be more concerned but I honestly think that mental symptoms are really hard to gage and easiest psychosomatic symptom. I have an active case of lyme with nerve involvement physically at least because my physical therapist is treated me for neural tension and I have some other neural symptoms but when my docs ask me about the mental symptoms I still deny it. I've had ADHD my whole life so how can I say that difficulty concentrating is worse or better or brain fog for that matter. Maybe I'm in denial and it is worse. It probably is but it's just so hard to gage mental symptoms and easy to imagine them. At least for myself so I just tell myself, I've always been adhd when I feel any mental symptoms. It helps me to feel less of the heaviness if this disease if I have less symptoms if that makes any sense. I don't know if that really pertains to what you are asking or just a personal rant. I hope you don't have lyme. Keep an eye on your symptoms and getting a lyme test wouldn't hurt but they aren't super accurate. It was pretty obvious when I got it though. Definite fatigue, all my muscles got super tight and even when I had people release the tension and do body work they would tighten up right away and no one could figure out why. Then I got a fever, rash and sick feeling. Knee pain and joint pain sorta come later. My whole body felt different and I kept trying to deny it and be like, well I took the month of antibiotics I don't have lyme anymore something else must be causing this but it kept getting worse and there was no other explanation so I had to accept it.

Post Edited (Green33) : 1/30/2015 9:04:54 PM (GMT-7)

Good question. I can say that my mom's neurological symptoms began last March. However, immediately prior to that she had 2-3 severe back to back sinus like infections and a gastroenteritis. We have lately also been discussing whether maybe she had symptoms that were lingering for years prior to her illness. For instance, about 7 years ago or more, she started working for a company that made her travel up and down the Eastern seaboard - namely CT, Mass, PA, VA in rural wooden areas. She started developing ankle swelling (almost like lipomas) and left wrist pain then that never went away despite wrist braces, diuretics, and motrin. And now guess what, since starting her detox and her lyme regimen, the ankle swelling is going away. Coincidence?? Who knows....

I started passing out. I was exhausted. I had pain in my hip and knee. Then I started getting headaches. Then the anxiety and rage. And then I started feeling like I was on the verge of passing out pretty much 100% of the time no matter how much I ate or drank. And then my throat starting feeling like it was closing up and I couldnt breath. I kept going to the doctor and couldnt get answers, and I became very depressed :(

The main one I remember was total exhaustion... everything was exhausting. Another thing that happened after or around when I had the bull's eye rash was feeling very weak, dizzy? and breaking into sweats and maybe a fever? I hadn't known it was lyme then... :)