Daughter tested negative for Lyme but high on Vit D.

I didn't have much faith in the test. She was bit in fall and tested negative for Lyme but pediatrician refused to test for Barto or anything else. On propolis right now and that diminishes the pain by 98% and she is running around like she is not sick at all. Probiotic takes care of her stomach which is giving her troubles. She was bit in 2014 in Fall and the head of the tick broke, when I tried to pull it out... ALSO, her vitamin D is high. She takes a multivitamin, but maybe 2x/week--not enough to cause vit D toxicity. Any thoughts of what causes this? I've read a bit about vitamin D toxicity. But my question is what can be the cause? She is 5 years old.

Still don't have my son's test results. THey were ordered by a different doctor. Don't expect much of that one either. Same with him: Propolis and probiotic cover him for pain and gut issues, but the neuro problems remain. Bit in 2013 in Fall. Any ideas of detoxing the nervous system that are safe for kids? He is 10 yrs old. He had vit D difficiency but is now at normal levels. His first Lyme test was negative and we are waiting to find out what this will show.

Thanks!

That does seem unusual. Does she take a multi vitamin or eat foods fortified with it? Others will have some better ideas I'm sure. I hope you can get to the bottom of it soon.

GP:

It is strange, indeed! She eats cereal and has milk with it, but she is not an extreme milk eater or cereal eater. My son consumes way more than her and he is the opposite: His vit D was 21 a couple of months ago and we had to supplement. Crazy!

Is the Vitamin D level that's high the level of active Vitamin D? As in 1,25 di-OH?

I asked my regular doctor to check my 1,25 di-OH level recently and she was in a panic when she saw the result: 187.5 ( normal range is10-75....and experts are saying the high end should really be 45!). I didn't know what to think.

Suzy Cohen ("America's Pharmacist") says this can happen with Lyme but I'm finding more information that it happens with sarcoidosis (which is what my regular doctor is concerned about). It appears that 80% of people with sarcoidosis test positive for Lyme.

Since I am having SO much trouble finding any info on the elevated 1,25 di-OH association with Lyme, I actually emailed Suzy Cohen (info is on her site) with a request for medical references.

If she responds, I'll be sure to share here.

Simela,

Sorry for any confusion. I didn't intend on sending you down the sarcoidosis path.

Instead, I was trying to say that Suzy Cohen mentioned in her newsletter that high 1,25 di-OH Vit D levels are seen in Lyme (as well as parathyroid disease, sarcoidosis, rheumatoid, fibromyalgia, and many other infections)

I haven't had much luck finding information online about the association of elevated 1,25 di-OH Vit D levels and Lyme.

Instead, I found more info about levels like that being seen in sarcoidosis (and yes, parathyroid disease) but really not even the other health conditions she mentioned.

Sarcoidosis can be temporary so it's entirely reasonable that Lyme can trigger it and, once a person is healed from Lyme, they also heal from sarcoidosis.

I'm sure you've read stories on here about people who developed hypothyroidism as a result of Lyme....and it corrected itself once they healed.

Still, just because I can't find information online doesn't mean it doesn't exist. I doubt Suzy Cohen pulled her words out of a hat and thus the reason I emailed her with a request for medical references.

I will surely keep you posted.

In the meantime, you might find this medical journal article somewhat comforting

file:///C:/Documents%20and%20Settings/Carol%20Dee/My%20Documents/Downloads/25D_DeLuca_2011_Dr._Chirgwin_1-18-11.pdf

The conclusion is that high 1,25 di-OH levels are not associated with Vit D toxicity.

Post Edited (cd3764) : 1/31/2015 6:28:12 AM (GMT-7)