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Posted 2/22/2015 8:21 PM (GMT -5)
Hi All,

This is a great community and am happy to be here seeing people helping others.Just a quick recap undiagnosed for 4 years approximately got lyme through Bed bugs(yes nobody believes it).A lot of neuro issues ans pain in muscles specially the shin pain kills me also have bursitis on both hips.

Treatment Started Late November 2014

Minomycin-M,W,F

Tinidazole-Sat,Sun

Klacid and Amoxil-Tues Thursday

Taking AL comples and NT detox everyday along with nystastin.

The new Change is

Minomycin-M,W,F

Bactrim-Sat,Sunday(Really makes me tired and the oain in shin aggrevates dont know wat its doing)

Azithromycin alonfg with another antibiotic-Tue,Thursday

Is this protocol aggressive because a lot of people have been taking high doses of bactrim unlike me??Any Sugestion welcome to get rid of those shin pains :(

Posted 2/22/2015 11:09 PM (GMT -5)
I think it's hard to say. What's more important is to have a dr. That specifically delineated a plan for you and you only. Everyone's reaction to treatment and to the diseases themselves for that matter is so different. When I first started treatment with my first LLMD, I was on a high dose of Bactrim and I believe Zithromax. I thought I was going to die and yet the dr. Was very hesitant to listen to me. If you cannot exist let alone actually live, aggressive treatment to me is fruitless. Lyme is not a quick cure. It's a slow steady tough journey.

For the shin pain, have you tried arnica gel. I love it.
Posted 2/23/2015 1:32 PM (GMT -5)
bump
Posted 2/23/2015 3:26 PM (GMT -5)
"oain in shin aggrevates dont know wat its doing)"

Shin pain? This is an important thing to tell your doctor as that may indicate Bartonella. Is that what you're on the Bactrim for?

What are you doing for detoxing?
Posted 2/23/2015 8:04 PM (GMT -5)
Surm1234,

I think the key question is whether you are making any improvement, even if small or subtle gradual changes. That will tell you whether your protocol is good. As Springjeans said, what might work for one might not work for another. It's a matter of finding a combination that works for you!

I tried Bactrim for awhile, but it only seemed to aggravate things and did not help me. So, we are going to try something else. However, I don't know if it is helping you. If not, you may want to talk to your doctor about another alternative. There are alternatives for Bart. Do you have a Lyme Literate doctor?

As for the dosage, it is probably based on what combo of meds you're taking and what your doctor thinks you can tolerate. You should ask because I can only speculate on that. I was taking Bactrim DS. It sure stirred things up, but I did not experience any progress with it. But that does not mean you won't. If you have been on it for a while and cannot tell if it is helping, you should let your doctor know.

As for the bed bugs, I absolutely believe they can transmit Lyme and co-infections! It does not seem widely accepted though. If mosquitos can, why not bed bugs? Does your current doctor believe they can?
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