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Trying to reach REMISSION or CURE

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Lyme Disease
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Posted 3/23/2015 9:39 AM (GMT -5)
I know there's alot of debate surrounding this. I guess I'm in the camp that believes what the most renowned Doctors in the field say, that we are all trying to reach remission. And with that belief I must accept the fate of possible relapse.

But what is this idea that if you've made it 3 years symptom free you won't relapse, you can only be reinfected? Is there any truth to that?

I got bit about 8 or 9 years ago and got a clear bullseye rash. I got prescribed a month of Doxy and I can't remember if I finished taking them all or what. After that I floated along pretty good. I went to work everyday, I caught every bug that was going around, I was tired, and nauseous. But that was about it. It wasn't anything that was enough to hold me back from life like it does now.

Then I got pregnant, and BAM. My world got turned upside down. The joint pain, the headaches, the fatigue, the nausea....etc. It seems everything changed in my body right away with the pregnancy. Which is to be expected!

So say I heal from this and a couple years go by and I get in a car crash or break my leg or I decide it's time to have another baby- that's enough to cause a relapse right? How do we stay healthy for the rest of our lives after we do get really sick from lyme? And if you are in remission do you still have to take ABX while pregnant years down the road?

I guess my question is how seriously does this stuff haunt us for the remainder of our lives? And what do we do to insure that we don't relapse? Live in a bubble??
Posted 3/23/2015 10:11 AM (GMT -5)
Pregnancy is what really triggered it for me, too! I've probably been infected since childhood, as I've always had some mild symptoms. Once my son was born, I started having some more fatigue, but I thought, for someone working full-time with a new baby, that must be normal, right? But I saw my friends with kids and babies and full-time jobs living pretty active lives and wondered how they managed it. We tried for another baby and suffered a couple of miscarriages. After each pregnancy, my symptoms became worse and worse. I finally realized there was something wrong with my body and found a great doctor who began treating me for Lyme.

I don't think there is any fool-proof way to prevent a relapse. That seems similar to looking for a fool-proof way to prevent death. I think the best we can do for ourselves is to take care of our bodies (healthy diet, detox, exercise), and be aware of the symptoms in case they do come back.
Posted 3/23/2015 11:17 AM (GMT -5)
http://lymemd.blogspot.com/2014/05/whey-do-some-patient-develop-chronic.html


There's a good article about why some patients develop chronic lyme. I can't understand even half of it right now.

For me it seems that alot of my Lyme stuff is controlled by my hormones. The more I think about it the more convinced I become that I was sick before I got that bullseye rash too. I was a really sick little kid. Constantly in the hospital, constant infections....etc.

When I hit puberty things changed drastically, and then again with my pregnancy.. I wonder if there are any good articles out there in strict relation to those ideas. I feel like if I can figure out why I got so sick in the first place it will help me figure out what I need to do to heal.

Back to the subject at hand- What about lasting damage from lyme? Say you are treated for 2 years and you still have some joint pain or get headaches occasionally, does that mean that you are still symptomatic or that you have permanent damage?

Honestly I find it hard to remember what feeling normal and healthy is like. I don't know if I've ever been 100% healthy. Say for the ones of us that are sick from childhood (TRAV!!), how much better should we expect to get? Just back to baseline, or better than we've ever felt before in life?
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