Sorry to monopolize the airwaves, but I think I'm on a downward spiral

Please keep us posted, this is scary! And I agree w happyjo, you have been in contact with your doctor, correct?

Is it possible they did not ramp you up on your thyroid meds slowly enough? I know that when trying to find my "sweet spot" on thyroid meds, if I took too much too soon (even if in the end that dose worked best) it can cause hyper symptoms to be thrown into the mix, which makes it all the more confusing.

I hope you feel better soon and can get it all worked out. I'll be thinking of you....

Teragram

Today is your turn too!

HUGS, HUGS, and more HUGS.

I wish I could be there in person to help all of you each day, a meal, a grocery trip, pick up meds or organize your bills and pay them!

This is all I have...

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So sorry to hear how much your struggling at the moment. I wish I could be more help, but wanted you to know I'm thinking of you and sending you hugs and support xxxx

It does sound like thyroid wonky stuff! Hope you have a TLMD (thyroid literate MD). They can be as hard to find as a good LLMD. Lyme can really jack with your thyroid!

I don't think I have a TLMD. My LLMD tries her best, but the dose of Nature Thyroid she had me on was too low.

I'm having a bad time with hypoglycemia (what is that related to??).

Also having a lot of trouble with "head rush," i.e. starting to pass out when I stand up.

Also have bad asthma right now, to the point where I can barely talk, and getting squeaky on the out breath. Inhalers help, but one is a steroid inhaler. At this point, unfortunately, I have no choice. I don't know how much of the steroids the lungs absorb?

I'm going to see my PCP tomorrow; I have no clue whether or not she's a TLMD, but I doubt it.

I'm having a really bad time with the Babesia right now ( and in general) too. It lets up some, and then starts over again. It was getting better until all the other xx hit the fan.

So that's my laundry list, ha ha!

Went to the grocery store to look at frozen dinners, and while many were gluten free, not one single one of them were gluten-, dairy-, AND soy free. So much for that idea.

I'm eating salt like a deer at a salt lick to keep from passing out, and I do now have snacks in the car.

M

Margaret - regarding your blood sugar issues. I read that if you've got thyroid problems - it can affect your blood sugar, as well as cholesterol.

I learned this recently...and my husband was diagnosed with hypothyroid in 2010 and soon after he had high cholesterol numbers, as well as higher blood sugar readings. No one linked it to his thyroid.

I know you mentioned low blood sugar, but maybe it is related to your thyroid being wonky.

Hope you can get to the bottom of it...and you start to feel better soon.

Big hugs to you...

I hope you feel better!!!! Hang in there.

Thanks for all your replies and support!!

My poochies are a lot of help, but I'm not a lot of help for them. There are days when all I can do is feed them and pill them, and they really long for a walk!

As for the thyroid, I was laughing at Girlie's post about being reprimanded. You're REALLY going to reprimand me!! I've been increasing the dose of the synthroid by tiny increments myself. I can't take this anymore. I'm keeping a very detailed log of my pulse, weight, and temperature. Obviously I wouldn't know how to dose myself on things like Nature Thyroid, knowing nothing about it.

I did see my PCP, and I've seen her before (when she worked at a different office) and I've always liked her. The thing is, she said I should wait 5 weeks before being tested again to see if the current dose worked.

Meanwhile, my LLMD suggested Nature Thyroid or Armour Thyroid, the PCP suggested some kind of compounded drug, and the ER doc just gave me synthroid. I've given permission to the PCP and LLMD to talk to each other, but goodness knows when that will be. My endocrinologist appointment isn't until June.

I'm still extremely sleepy much of the time.

I've had hot sweats, cold symptoms (these happen pretty often), a stomach flu caught in the ER, constipation, and finally, normal stools (sorry guys).

I tried to call my oncologist (who is also a hematologist) about my low Immuneglobulin levels, and the office blew me off. I have an appointment with him in July.

I'm now thinking basically all doctors are crappy, and I'm tired of doing the revolving door doctor thing.

Which is why, (oh horrors) I'm dosing myself (at least with the Synthroid). I didn't go to medical school, but I think I have the equivalent of medical school knowledge in Lyme Disease (practically), though perhaps not in all its complexities.

This is terrible, but I try to stay awake by being on the computer, which is probably bathing me in EMFs.

Meanwhile, I have to keep the cell phone (you tube) on "rain sounds" at night (in the bedroom) to drown out my tinnitus.

Yesterday, I was reading that metals can protect against emfs, so I placed the cell phone on a nice silver tray I had inherited from my mother (seriously, I'm not joking).

My PCP wants me to order some materials that can protect against EMFs, e.g. from website LESSemfs. You can buy the cloth and hem it yourself to make sheets. I didn't tell her about the cell phone; she would have shot me.



Reprimand me if you will, but I have to have a life, even if that means being my own doctor. However, I still can't do much about the low IGs.

I know. I'm bad, bad, bad. Much worse than Girlie.



Meanwhile, my poor poochies have dug up the yard, and are destroying some nice bushes that I've had for 17 years!

M