Broke out in hives, I must be allergic to the new medicine

CRAP! I'm SO itchy! Maybe if I'm allergic to it that's why it hasn't been working very well. It's called Diamox or Azetazolamide for brain swelling.

I took some benadryl and emailed my doctor. Hopefully even though it's Sunday I'll hear back from him. I hope I can keep taking it as long as I have allergy medicine on hand. Or there is another option. I can't keep having such excruciating pain that I don't even want to blink and can't lay all the way down.

I am NOT very lucky lately. AH!!!!!!!!!

I came across information I had printed out early last summer.
It made me think of you and what you are dealing with. It may not be what your issue is but it is at the very least useful information that you can eliminate as the cause.

http://sponauglewellness.com/wellness-programs/lyme-disease/

After Lyme patients develop antibiotic-induced gut toxicity, yeast mycotoxins and bacterial endotoxins migrate from the gut to the brain. These toxins are fatty in structure and deposit in the fattiest organ, our brain which is 60 percent fat. These neurotoxins inflame the brain’s white matter, the insulation on brain neurons called myelin, adding to the cumulative level of neurotoxicity which is ms lyme disease already significant in Lyme patients from brain accumulation of the Lyme toxin. Antibiotic-induced neurotoxicity causes further suppression of the immune system by “shutting down” the electrical current in the brain. This is problematic because the brain’s electrical activity is responsible for stimulating cytokine activity. Cytokines are the chemical messengers that activate our natural killer cells. When neurotoxins inflame the myelin sheath of brain neurons, they change the electromagnetic field surrounding the neuron slowing the speed of the electrical impulse. By this mechanism, neurotoxins essentially suppress the brain’s electrical activity. In a healthy brain, electrical current jumps over the myelin on brain neurons in rapid fashion. However, when the myelin sheath becomes infiltrated with fatty neurotoxins from the gut, in addition to toxins from the Lyme spirochete, it fails to effectively modulate immune function.

You have dealt with so much....you need a proper diagnosis especially when it's effecting your brain. It's time for your luck to change. Wishing you the very best.
Janet

Hang in there IHL! Maybe there are alternatives to Diamox. It does list some serious allergic reactions. If it is bad, you should go get evaluated tonight at the ER. Call your doc first thing.

I'm sooooo sorry you're having such a rough time. I want things to turn around for you so much! Is someone there to keep an eye on you? I don't want you to be alone right now.

Another e-hug will have to do from me. Sorry I can't do more. :))

Shoot!! I was hoping this med would be one to help you this time. I wish you could come to my doc since he has more training than the average LLMD/ND, but I know it would probably be too long of a drive and maybe cost you too much.

You may need to go into the ER if it escalates any more. I feel so bad for you and I'm sorry you've had such a difficult time. Many hugs!!

I will pray for you... I can't offer any other comfort but this... I called my RN sister to ask her about this drug but she is not home. I'll try her cell now...

I can breath good no swelling anywhere

I want to go to the hospital I feel like I should be there. The thought of sitting in the er for 5 hours to see doctors that believe Lyme is healed in a month doesn't sound appealing. we need doctors to understand. I feel like at least I'm comfortable at home and no one is scoffing at me.

Thank you simela. My guy read the whole paper that it came with and he was surprised because this mor ING I was complaining about bleeding and lower back pain and it's on there as a red flag. My doctor told me it would make my hands and feet tingly. They already have been Since before. The complete numbers is new.

I want my mom and my doctor. Right now!

YOu are right, my sister said you should be in the hospital!

Some things that will help you and not make things worse:
No anema if you are constipated
don't put a lot of effort to go to the bathroom
limit your liquids
elevate your head and shoulders 30-45 degrees, like a hospital bed
no sudden movements of the head
place a collar around your neck if you have one, to support your neck
every 2 hours change positions a little for short periods of time and besides this, stay on your back, midline 30-45 degrees
don't bend knees

This is to make you feel better and to avoid making things worse, but there are a lot of warnings. The medicine you were prescribed works on 4 different levels. I will write another message with the rest.

Post Edited (Simela1) : 4/12/2015 8:49:54 PM (GMT-6)

Thank you simela. Oddly enough I've been doing a lot of those things already I'm most comfortable in that position. I was just thinking a bit ago I haven't drank very much water tokay

i havent decided if I'm going to take more of the diamox. I don't know what to do.

If the swelling in your face is down, I think it did something, no? Do you still have the bad migrane? ALso, she said they usually give extra benedryl to patients with this drug if they brake in hives, but because of your weight (I told her you are 95 lb, I hope I got it right!), she said you probably shouldn't take more benedryl than the recommended dose. HOW ARE YOU FEELING besides the hives, itchiness, and bleeding? Is your head feeling at least a little better?

Yes I'm supposed to take more right now.

I am 95 pounds. I'll have to look up that syndrome. My blood pressure is 107/71 heart rate is 66. That is the lowest I've seen it in 18 months. It's usually at least 90 but usually closer to 110-120. Out of the norm for me

I don't know if I should take it or not. So sad it's sunday

I don't think that's the pulse. But my sister is sleeping and I can't wake her up, she has to get up early and she doesn't leave with me. Use your best jodgement if you don't want to go to the ER. If I were you, I would go, because I just looked up some pictures of that syndrome, and you won't want that! Plus it may take weeks to recover from it, depending how severe it is. One of the symptoms is hives. Fortunately, you don't have the others.

Symptoms
By Mayo Clinic Staff
Multimedia

Stevens-Johnson syndrome
Stevens-Johnson syndrome

Stevens-Johnson syndrome symptoms include:

Facial swelling
Tongue swelling
Hives
Skin pain
A red or purple skin rash that spreads within hours to days
Blisters on your skin and the mucous membranes of your mouth, nose, eyes and genitals
Shedding of your skin

If you have Stevens-Johnson syndrome, several days before the rash develops you may experience:

Fever
Sore mouth and throat
Fatigue
Cough
Burning eyes

When to see a doctor

Stevens-Johnson syndrome requires immediate medical attention. Seek emergency medical care if you experience any of the following signs or symptoms:

Unexplained widespread skin pain
Facial swelling
Blisters on your skin and mucous membranes
Hives
Tongue swelling
A red or purplish skin rash that spreads
Shedding of your skin

I am praying for you. That was all I could do for my son when he got no help from the doctors! It kept us out of the ER many times :) If it really does take 5 hours to get seen, I really don't know why they call it ER LOL THey should call it waiting room, not emergency room LOL