Currently in the ER...... Fml

Hang on girl! You can do this! Just get thru the nonsense with the egocentric idiots and get to the bottom of this... then get back home and rest... hopefully rest will come.

I'm with ya in spirit!

I hope you're doing better! You should definitely give Dr. H a call tomorrow and let him know what's going on with you. He will be happy to talk to you on the phone and see if he has any suggestions/ideas. He's used to getting calls with questions and concerns.

Thanks everyone. This nasty disease would be a lot easier to fight if I wasn't having such significant heart symptoms. I ignored the ignorant doctors and just took their stupid infectious disease doctors recommendations and called it a night.

Good news is I have no blood clot in my lungs and my heart seems to be ok.. I walked into the ER with a Bp of 155/96 and my hr was 125. Eventually my Bp dropped to 117/77 which is more my Bp and my pulse was still high (I'm still suffering from tachycardia).

I appreciate everyone's kind words. I guess it gives me a piece of mind to sleep tonight... I'm just emotionally and physically exhausted..

Alyrose
So sorry! I spent Christmas Eve in the ER. And many nights since then w/ the tight chest, palpitations, etc and regret not going to the ER to be sure everything is OK. It feels silly to only be anxious, but it causes real sx and once again, I agree w/ Courtney: it's good to rule out anything obvious.

Also, the next time ANY health professional acts UNPROFESSIONALLY towards you, simply repeat this exact phrase to them, calmly, and firmly and confidently, "I have lyme, it's OK if you don't know much about it, it is not well understood by the medical field, yet. But I didn't come here to get talked down to or judged. I just want help with my heart.. I'm scared to death." You will be surprised how most will straighten up if you're honest and call them on their shi*t. Remember, you are paying them as they are providing a service for you.

I sincerely hope you can get some sleep tonight and you might want to keep an Rx of valium on hand. It's normal to be scared and it's good that you're posting.

p

Pirouette said...
Alyrose
So sorry! I spent Christmas Eve in the ER. And many nights since then w/ the tight chest, palpitations, etc and regret not going to the ER to be sure everything is OK. It feels silly to only be anxious, but it causes real sx and once again, I agree w/ Courtney: it's good to rule out anything obvious.

Also, the next time ANY health professional acts UNPROFESSIONALLY towards you, simply repeat this exact phrase to them, calmly, and firmly and confidently, "I have lyme, it's OK if you don't know much about it, it is not well understood by the medical field, yet. But I didn't come here to get talked down to or judged. I just want help with my heart.. I'm scared to death." You will be surprised how most will straighten up if you're honest and call them on their shi*t. Remember, you are paying them as they are providing a service for you.

I sincerely hope you can get some sleep tonight and you might want to keep an Rx of valium on hand. It's normal to be scared and it's good that you're posting.

p

Good advice P...I wish I wouldve thought those words to say in all my hospital visits where I was treated poorly. They loved to tell me I needed to see an Infectious Disease Doctor! They didnt know that I did that and was still NOT well was the result of seeing an ID doc! Im sorry to hear you spent x-mas eve in the hospital due to all this crap...as if it hasnt taken enough from us but to ruin your xmas eve was a real dissappointment I can imagine :-//

-Courtney

Oh... and it was so good to see the post from Orchid_rain... and then to see that you could relate to her experience. Very good indeed! :)

Gosh Alyrose2, I am sorry that you are going through that. I too ended up in the ER three times when I first got infected. And I too was told that it was anxiety. I was given SSRI's and Benzo's for my anxiety which I refused to take.

I would say that the good thing about the ER visits was that all sorts of tests were done on my heart and arteries so that when I continued to suffer from chest pains, chest pressure, high blood pressure, palpitations, and a racing heart I felt confident that my heart was OK at least.

Although I continue to have these issues from time to time three years later, they are not as bad as they used to be. I can even say that I've gotten used to them and can often ignore them now.

Pirouette said...
have lyme, it's OK if you don't know much about it, it is not well understood by the medical field, yet. But I didn't come here to get talked down to or judged. I just want help with my heart.. I'm scared to death." You will be surprised how most will straighten up if you're honest and call them on their shi*t."body"]

Pirouette, you freakin' rock! What a great response.

pirouette - I'm so sorry you had to spend xmas EVE in the ER and had to endure that. I would never wish any of this on my worst enemy so thank you for sharing that story. Also, Thank you so much for those suggestions. I know I should have responded better to the doctor but in the heat of the moment I was so fed up, upset and scared that the only thing that came out were tears... So, I will have to realize that not many people take lyme seriously and that's SO sad. But thank you, seriously!! :)

orchid_rain - I bought myself a wrist blood pressure cuff, so hopefully that'll ease my mind. I think the antibiotic is killing the lyme and I'm feeling it. This just really sucks!!!

bellyfull - that literally made me LOL! My mom was so surprised because I have like the biggest italian attitude. However, when I'm in stressful or scary situations I am the most polite person (when normally I'm my loud, bubbly and of course stern italian self).

happyjo - it seems like lyme patients have to be humiliated, yet patients with aids or hep or anything else will be given care. But I (and the rest of us) get questioned. I don't get it. Thank you for thinking of me, it helps.. believe me!

healing98 - you're from the chicagoland area too, right? I hope you didn't go to the same hospital as I did. LOL! But ya, I think I've had every test done except for an echo and everything seems to be working well. Just these crazy buggers attacking my poor heart. :( Oddly enough, it helps to hear that others have experienced similar situations as I have..

Runnergirl82 - I'm ok now. Still a bit out of it today but completely exhausted (I didn't sleep well last night). I haven't gotten a chance to call Dr. H yet so I think his office is closed. I'll call him first thing tomorrow. I'm just emotionally, physically and mentally exhausted...

Traveler - I'm doing ok. Still have some discomfort with dizziness but I'm sure those are just my lyme & co symptoms acting up.. Who knows at this point.. My mom is such a saint. She is the nicest and most caring woman in the world, I'm so lucky to have her. However, she saw how upset and hurt I was and that's why I think she broke down. Because she saw FIRST HAND what's it like to be talked to like that and doubted, when she sees me suffer every single day. Like I've said before, this disease affects EVERYONE, not just us. It's so hard.

I just want to say thank you to everyone that took time out of their day/night to respond to me or send encouraging words. I truly appreciate it. This is such a hard time in my life that even tho I've never met or seen anyone on here, I feel so connected to everyone. I'm still scared beyond everything but I'm keeping the end prize in mind, my health and my life back. So, thank you from the bottom of my heart.

HI Alyrose,

I have not been on the forum lately, I have a bad cold. I was so sad to hear that you had to go to the er and be abused by those stupid doctors and nurses. It is not surprising anymore, but I still get so upset that they can treat us like that. It is their ignorance we pay for. I can imagine their eye rolls. I know I probably should not say this or feel this way, but I hope that nurse gets Lyme disease, a real bad case too. I know, I am awful.

Your Mom sounds wonderful. My son has been chronically sick for about 8 months now. He is 15. I cry for him. My heart breaks for him. My heart breaks that I cannot fix him. I can feel for both you and your Mom.

Your chest pain will go away. I had that for about 9 months. It was like electric shocks came and went. Like a tight feeling. It was replaced with another pain. That was way before I knew what was wrong. Now I am getting better and you will too! Hang in there girl!

You need to find ways to increase your detoxing too.

I'm so glad that your doc is knowledgeable about backing down the dosage though!!

traveler - I'm trying!!! I drink lemon water, I dry brush every day, I do foot detox baths 1-3 times a week and actual detox baths 1-3 a week as well. I had a reaction to the last bath I was in because I was so relaxed, I forgot to get out!!! Ah, silly lyme brain!! :( Any suggestions???

Dancingbear* - I was actually looking on amazon today for one. I just don't which brand or which one to buy. I can afford it, just want to make the right purchase. & I'm so glad your son is doing better! I know I have an amazing relationship with my parents and I'm sure he appreciates everything you do for him, you sound like a very great and loving mom! The love you feel from a parent is everlasting :)

Sayyadina - I spoke with my llmd today, he told me to back off my one dose. I also have a cardiologist that I work with. I've had a chest CT, heart CT, numerous EKGs, ect. The only thing I haven't had checked done is an echo. Which I'll be following up with. It helps to know structurally my heart is good, but I don't feel that way.. So it's frustrating.