Posted 5/24/2015 12:00 PM (GMT -5)
jackdg - I have some pots/ANS symptoms too.
Here are symptoms I have or had since lyme: (some may not be ANS/pots, not sure)
shivers/hot flashes and sweats
temperature dysregulation (maybe why I have shivers and sweats) - I can feel cold when it's warm, and warm when it's cold (but my temperature doesn't fluctuate much)
feel light-headed when I stand up.
Standing up and have a pulsing in my head.
easily overwhelmed.
off balance
anxiety ( never thought this was ANS related - but definitely from brain infection)
My anxiety is almost gone - I get it a bit in the morning when I first wake up - a doom and gloom feeling and then I have a hot flash and sweat. This started to go away before treatment and continued to improve after starting antibiotics.
My balance issues are almost gone...that improved a few months after starting antibiotics.
Feeling light headed when standing - most days it's gone - after several months of antibiotics.
Not easily overwhelmed anymore - that went before treatment started...but I had stopped working at my stressful job, so I think that helped.
Yes, to what Trav said - it will only get worse without treatment.
You may have periods of time that it isn't as bad...but it will come back with a vengeance. Lyme can do that...symptoms can lessen, new ones come, then symptoms flare...etc.