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Posted 5/26/2015 2:56 PM (GMT -5)
I'm really struggling. Started off this week with a bang with upping my doses of Ceftin and Bactrim.... had some nausea that eventually passed, but started herxing right away... it seems my typical herx includes crazy intense muscle and joint pain. I spent most of yesterday horizontal, because my legs hurt so bad when standing. Thought it was easing, but woke up to pee last night and it all started again, this time more intensely in my right elbow. Advil wouldn't touch the pain. Strangely enough, a cold pack helped a little bit. Today's an off day... things have eased some, but I'm still sore, and exhausted. I'm feeling really just so disheartened about picking back up again tomorrow. I'm supposed to go in for a magnesium IV tomorrow, but if things worsen again, I won't be able to drive myself.

Also, sorry for TMI, yes, I'm detoxing like crazy, but my business seems to get more itchy every time i take a detox bath... is there anything that can be done about that?

All in all, I feel disheartened, alone, and afraid that this is will be my life forever more. Hrrrrumph. I'm fairly new to all this... how do you all cope???

Post Edited (wildlyme) : 5/26/2015 2:06:33 PM (GMT-6)

Posted 5/26/2015 3:09 PM (GMT -5)
Hi wildlyme,

I'm sorry you're struggling, as so many of us here are. But you're in the right place and you were smart to reach out. Unfortunately, healing from lyme & co is a very long, labored, and complicated process. But you're way ahead of the game finding this forum and you're in tx, so that is good. Stay strong and focused and you will get through this. I hope other posters come along and offer coping suggestions. Everyone is different but it seems to really help to talk about it.

Sounds like the baths are drawing out yeast/fungus, which is good! But if it's drawing out enough to give you sx of that intensity, you're better off also treating for the y/f overgrowth, which is VERY common when people are on abx (and shame on MDs who don't help people prevent overgrowth in the first place).

I would include a good anti fungal in your regimen, pure nystatin powder, discussed in this thread:
www.healingwell.com/community/default.aspx?f=30&m=3412983

One thing I think I forgot to mention in that thread is that a no sugar, low simple carb, no processed foods diet is essential w/ y/f overgrowth and also a big part of healing the lyme & co, too.

p
Posted 5/26/2015 3:11 PM (GMT -5)
wildlyme - How do I cope? Well, I have my ups and downs. I do what I can to try to distract myself and get my mind off it.
Because my nervous system is affected....I have to get my mind off of it...or I get anxiety creeping in...and then my nervous system vibrations ramp up and then there goes the nerve pain.

I listen to music loud. That's what I do sometimes. I try not to sit down and do nothing...but for people with extreme fatigue that is difficult.

I don't know about the itching....is it from the epsom salts? Does it happen it you bath without them? Maybe you will need to back off on the salts for awhile.

I think I'm coping better because I am somewhat better symptom wise. In the beginning - I just wasn't coping at all...I was a mess....everyday.

If your herxing doesn't settle down, even with detox...back of on the meds for a few days - go back down to the lower dose and then try again after the herxing has subsided.

Are you doing lots of other things for detox? Drinking lots of water. have you tried pinella and burbur?

Pirouette has some excellent ideas in her post.
Posted 5/26/2015 5:12 PM (GMT -5)
Sorry you are feeling so poorly wildlyme. How do I cope? Like Girlie I certainly have my ups and downs too, but when I was extremely sick I used to read a lot to distract myself. I know some people aren't able to read with this disease but it really helped me. Anything that takes your mind off of yourself for a while is helpful.

I'm at the point now where if I have a bad day or days, I know that it will pass so I tell myself that and try not to get too worked up about it. Once you've been on the roller coaster for a while you kind of get used to the ups and downs (sort of).

I know it is extremely difficult to take medication that you know will make you feel worse before you feel better. It's so challenging, but we have to do it! Just know that every time you get to the other side of the herx you will have reached a higher level of healing. That's what keeps me going now.

I also try to concentrate on the positives in my life and give thanks every day for even the smallest things. Take pride in every little thing that you accomplish, even if it's just making a meal.
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