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Weight gain or weight loss with Lyme?

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Posted 6/7/2015 12:35 AM (GMT -5)
my weight stayed the same for all 2 n a half years of symptoms up until this past april when i went strict palio lyme diet and went from 178 to 162 from april 16th to june 2nd was the last time i was weighed
Posted 6/7/2015 7:20 AM (GMT -5)
Weight loss. When I first got sick I went from 125 to 104 in the matter of 2 months. I'm 115 lbs now but it is really really hard for me to put and keep weight on.
Posted 6/7/2015 7:51 AM (GMT -5)
Weight loss. I had been the exact same weight for the past 15 years, regardless of exercise or diet. I lost 10kgs in a couple of weeks when I first got really ill. I now struggle to keep weight on and am down to 50kgs. (Granted I am a short ar*e and so am unlikely to wash down a plug hole in the near future).
Posted 6/7/2015 10:03 AM (GMT -5)
I read some interesting research and it coincides with this topic.

Certain bacteria, including lyme, produce endotoxins when they are killed. They did a study on non- infected mice in which they injected purified (non-infectious) endotoxins into the mice. The mice became obese and insulin resistant.

Dr. Shoemaker finds that the patients he treats with endotoxins issues from lyme are generally overweight.

25% of the population has the genetic HLA type that makes their body unable to remove the endotoxins on its own. These people need a fat-soluable binder to remove these lipid based endotoxins. That would be why cholestyramine is effective as it binds specifically to fat- soluable toxins.

Always more to be understood on the topic but it seems that I fall into the camp of my body not being able to eliminate this specific type of borrelia toxin. Going to see a special doc about this - this summer.
Posted 6/7/2015 3:18 PM (GMT -5)
First off, I want to say that CanLyme has no references for physicians out this way, but that's no surprise, they can't recommend someone who simply doesn't exist (lol, but not lol).

And SLML, I want to say thanks for the kind words.. that's much appreciated, as is the reference for the book!
Posted 6/7/2015 4:32 PM (GMT -5)
Sorry to hear that Jude. It seems that BC and Ontario are the most progressive provinces in terms of treatment for lyme disease.
Posted 6/7/2015 4:38 PM (GMT -5)
Well just because I haven't yet found what I'm looking for, it doesn't mean that a solution won't come about in the future. I know that when I begin self treatment, it will work to a large degree once I figure out what works for me.

But too, I want to be one of the ones who creates change in Manitoba. It's going to be hard. The doctors I have seen celebrate their obstinacy and blocking maneuvers.
Posted 6/7/2015 6:41 PM (GMT -5)
For me, right off the bat it was pretty extreme weight loss. But I actually attribute that to adrenal crisis, rather than lyme itself. I have noticed that every time I herx (which for me involves at least a couple days of puking and barely eating anything) I gain a couple pounds. Seems unfathomable but my doctor and I think that what happens is that the amount of toxicity in my blood from the die-off makes whatever T3 I've got going on unusable, so my metabolism all but stops. After the herx the weight comes back off. Maybe it's similar for you, and after you get to a point of less toxicity your T3 will become more usable again.

What I dislike is how much my weight seems to people to be such an appropriate topic of conversation. I guess because I lost so much so quickly, people are always commenting on whether I look "healthy" or not, whether I look too skinny or in the right range. It's pretty uncomfortable and makes me body conscious in a way I would rather not be.

So sorry you're going through this... It's terrible to feel so sick and also have to deal with weight concerns.
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