Inaccurate information from the CDC
Carl Tuttle
Hudson, NH
Jul 4, 2015 — Please share the following message……
From: "Carl Tuttle" <runagain@comcast.net>
To: "Dick Blumenthal" <Dick_Blumenthal@blumenthal.senate.gov>, "Kemp Hannon" <hannon@nysenate.gov>, "matt sheehey" <matt.sheehey@mail.house.gov>, bonacic@senate.state.ny.us, Serino@nysenate.gov
Cc: bfarrell@poughkeepsiejournal.com
Sent: Thursday, June 25, 2015 9:47:34 AM
Subject: Inaccurate information from the CDC
Dear Legislators,
On June 25th I submitted the following message to the CDC through their online contact form. I received acknowledgement from the CDC but as of July 4th no changes have been made to their misleading web page.
Understanding the EIA Test
www.cdc.gov/lyme/diagnosistesting/labtest/twostep/eia/index.htmlCenters for Disease Control and Prevention
Bacterial Diseases Branch
Foothills Campus Fort Collins, CO 80521
There is inaccurate information on this CDC page.
CDC statement in question:
“…..almost everyone with Lyme disease will test positive.”
A paper co-authored by Barbara Johnson, an expert with the CDC Lyme program, reveals that the current two-tier method is positive in only 31% of those with erythema migrans (the bull's-eye rash associated with Lyme disease) and in only 63% of those with acute neuroborreliosis or carditis due to burgdorferi Lyme disease. This means that out of 100 patients who have Lyme disease, we might misdiagnose 69 of them, leaving their infections untreated.
Barbara Johnson paper:
2-Tiered Antibody Testing for Early and Late Lyme Disease Using Only an Immunoglobulin G Blot with the Addition of a VlsE Band as the Second-Tier Test
cid.oxfordjournals.org/content/50/1/20.fullIt is also well known that antibodies to Borrelia are not produced in sufficient quantity for serology to identify in the first 4-6 weeks so where is this disclaimer?
Please revise this page to reflect accurate information.
Sincerely,
Carl Tuttle
Hudson, NH
Acknowledgement from the CDC
CDC Reference Number:
RE: CDC-INFO: Inquiry
[ ref:_00DU0YCBU._500U0LEOFz:ref ]
/www.change.org/p/the-us-senate-calling-for-a-congressional-investigation-of-the-cdc-idsa-and-aldf/u/11299975p