Lyme/co & pots???

Any one have experience with this or information on it? Docs are thinking lyme induced pots.. I'm supposed to see a cardiac electrophysicist and see if my heart is going haywire. Meanwhile I'm over here bed bound because if I get up, my bp drops and my hr sky rockets. I've been popping anti anxiety meds like they're skittles because I'm hoping that calms everything.

I'm scared. Seriously terrified. I've never been THIS bad before..

Went down the pots road, too. Even contacted famous doc in CA who does the vein procedure (you later find the Rotorooter is not a permanent solution). It is scary. All I can say is-- had it baddddd...with treatment it did improve.

Hi Alyrose,

You are so NOT alone. I went through this in 2013 and everything is good. My pots and lyme went away. It is very scary but I would try to avoid anxiety medication as that can have serious withdrawal effects. At least not using them like skittles. With lyme, it is just one of those unfortunate symptoms that many of us have. What I took that helped was extra magnesium, hawthorne tincture - 90 drops 3 times a day, then I dropped that to 60 drops twice a day, then 30 drops twice a day. , but I'm not a doctor so I would do some reading or consult with a dr before taking the hawthorne. It is really popular with the herbalist, Buhner. That was what I did. Hope others on here have suggestions for you too, hang in there.