Requesting advise on nerve healing

Hi folks!

I am trying to find something that will help heal my peripheral nerves. This has been an ongoing process since I started treating with my LLMD (my signature shows my history)

I'd been taking Neuro antitox CNS/PNS since Feb and didn't notice a difference after going through 3 bottles.

Burbur and pinella have been part of my protocol since before I started Cowden.

I take ALA, methyl B12 and curcumin and boosted the doses after reading about higher doses helping with peripheral neuropathy. (I take a bunch of other vitamins/supplements as well)

And, I've just started my 5th bottle of organic Avena Sativa.

Stephania once again caught my eye after re-reading Buhner's Lyme book and I just ordered a bottle.

I know nerves can take awhile to heal and, surprise surprise, I've become impatient since peripheral neuropathy seems to be the difference between me being healed and not.

I am open to any suggestions.

Thanks to all who post!

Thanks, Girlie.

Yes, I've been taking methyl B6 (I'm hetero C677T) for awhile....100mg every evening.

I'm reluctant to increase the dose based upon what I've read. The following is an example:

www.drweil.com/drw/u/ART02763/vitamin-b6.html

I don't need any more numbness and tingling lol


Oh, I forgot to mention that I take 400mg magnesium malate BID (I believe magnesium is known to help with nerve issues as well)

Still open to suggestions :)

Thanks for the sharing and Vitamin E suggestion, Girlie.

Your sharing reminded me that I'm also taking a B-complex...and it contains 50mg methyl B6.

Add in the 3mg contained in my multi along with the 100mg methyl B6 supplement and I'm getting 153mg/day. Hmmmm.....

I might ditch the 100mg supplement and see if it makes any difference.

CD,

My neuro's have me on Alpha Lupoic Acid; 600 mg three times a day. I have had neuropathy for about three years. It has definitely improved, but it is also definitely still there.

Good luck,
Ed

Thanks happyjo and ShutterGy!

I take 5000IU Vit D3 to maintain my level between 50-70 per Vit D Council advice.

And, I was taking 300mg ALA BID since my Dx and just increased my dose to 600mg TID last week per my latest-greatest research (and my LLMD's approval). It's encouraging to read that 600mg TID helped someone else.

Best of luck to both of you :)

Thanks so much for your input, GH! My LLMD doesn't seem too savvy about the mutations. He admitted that he'd checked the MTHFR's mostly out of curiosity and the attention the topic seems to be getting.

I'm sure you now realize I probably had no other genetic testing. At this point, I'd like to try some simple things that might help - especially since I don't think I have an ammonia issue.

My only issue is peripheral neuropathy that manifests different ways. It's greatly improved from what I dealt with when on ABX but, I didn't have these issues before starting treatment. I must admit that I didn't expect to still be in treatment over 1 year after the tick bite....especially since my symptoms were/are so mild (for which I'm extremely grateful).

I've already decided to ditch the 100mg B6 supplement so my net intake will now be 53mg daily. Can you direct me to some info about appropriate intake for someone with my mutation?

Thankfully, my blood counts have remained normal throughout treatment. I take Marine Omega, NatureMade fish oil and flaxseed oil. I also eat chia seeds daily and have at least 1 tbs. coconut oil daily.

Do you recommend me doing any math that would help me to identify optimal EPA/DHA intake? And, if there is an optimal intake, would you kindly share what you know?

I've always appreciated your posts on this form, GH.... and I truly appreciate your input on this thread.

Post Edited (cd3764) : 7/16/2015 12:43:37 PM (GMT-6)

Alcar has been known to help with nerves.

Which abx were you treated with?

Post Edited (Tunaaa) : 7/16/2015 7:26:55 PM (GMT-6)

Sorry I went MIA for awhile there...life has a way of doing that for me :)

Thanks for the additional posts!

@ candleinthewind

Please forgive the typical Lymie request: would you mind sharing what dose of ALA you had been taking, what dose you're now taking and how long it took to experience improvements?

@ Tunaaa

Thanks for the reminder about Alcar (acetyl-l-carnitine). Per Dr. B's 2008 guidelines, I'd been taking 1500mg in the morning on an empty stomach for a loonnng time. Based upon more recent research I did, I'm now dividing that dose and taking 500mg TID to see if it makes a difference.

I was treated with doxycycline and amoxicillin.

@ Georgia Hunter

Thanks for the bloodwork suggestions and the idea about Dr. Yasko's forum. It was interesting to read that you'd taken as much as 9 grams of fish oil per day because Chris Kessler wrote about the possibilities of too much:

chriskresser.com/when-it-comes-to-fish-oil-more-is-not-better/

What do you think of this? (I'm obviously not listening to Chris :))

Post Edited (cd3764) : 7/21/2015 7:56:36 AM (GMT-6)