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How many of you are pretty much bed bound or close to it?

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Posted 7/25/2015 5:49 PM (GMT -5)
I feel so pathetic! It's driving me insane how much rest my body needs lately. I usually can at least make it to mailbox and lately I can hardly make it to the other side of the house. Ah!!!!

I'm so sick of reading and watching TV. I started crocheting some stuff and trying to find detailed other things to occupy myself. But dangit! I hardly have the strength to sit in a chair at the table to eat a meal.
Posted 7/25/2015 6:49 PM (GMT -5)
I thought you were doing better? Just keep at it!

I'm not bed bound... I'm basically completely normal. I just had 1 symptom about 5 minutes ago, my scalp was tingling a little. I wonder what the heck it is? Hopefully it's just the blood vessels in my scalp from bart. I think the whole time I was sick like 90% of my symptoms were from bart.

I finally figured out what i need to do... FOCUS on bart! lol I'm going to bump it up a few notches.
Posted 7/25/2015 7:19 PM (GMT -5)
I seem to teeter totter. I get better and then get worse and back and forth. It drives me crazy. Right when I get used to being able to do more BAM! I'm struck back down.
Posted 7/25/2015 10:13 PM (GMT -5)
For me, it really comes and goes.

There are days when I can barely, just barely, walk up and down the stairs to let the dogs in or out of the yard. Sometimes, I'm too tired even to turn over in bed.

Then on other days, I can walk a mile, or even go kayaking. That's not to say I feel great on those days either, but just the fact that I'm able to do those things is a testament as to how good of a day it is.

Margaret
Posted 7/25/2015 10:42 PM (GMT -5)
Sounds like we are in the same boat Margaret. Ugh.. I can't wait for everyday to be a good day!
Posted 7/25/2015 10:53 PM (GMT -5)
Try bee venom therapy, it is doing wonders for me and it's cheap if you do it yourself.

I hate to see you so sick.
Posted 7/25/2015 11:57 PM (GMT -5)
Also be wary of over-doing it on "good" days. That was my pattern for quite a while when I began to improve. I would take that feeling of wellness and energy and try to catch up on all the things that had not been done. I would do too much and get knocked back on my butt again. Same thing happened when I started working again.

The hardest part of the the recovery process for me was realizing that I could not push, it was completely counter productive. I'm not saying be totally inactive, because mild consistent exercise is very helpful to healing and you don't want to get completely deconditioned. Just that slow and steady is probably better in the long run than fits and starts.
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