Hello everyone,

I've been suffering for over 3 years now. I've been to over 20 doctors and therapists, they found nothing, did all the possible tests (besides lyme disease test). Tried many many cures and treatments, nothing works. Everything started like this:

I've been to a concert that took place outside. 4 days later I ate something at the fast food restaurant, I vomited everything....and 2 days in a row I vomited again (twice, and the last time) and got really dizzy that I couldn't sleep. I thought I had a cold or something. My eyes were sensitive to light, had to wear sunglasses even indoors and outside at night. Daily headaches (tylenol couldn't help, they are non stop), daily back pain, intense dizziness, sensitivity to odors, medium pain in arms, feeling i was drunk all the time, poor balance, pain in shoulders, very tired, exhausted, nausea esp. in the evening, tinnitus, earache , neck ache, eye ache (pressure), sensitive to sounds (once i cried because the music at a concert was so loud for me that i thought it was playing next to my ears),i get dizzy when i get out of my bed, had palpitations during one entire month, happened to sweat during the night, have excessive sweating in hot and humid weather, anxiety, irritability, poor memory (short term), can't really focus, brain fog, dizziness that wakes me up during sleeping, panic attacks during the night, had some kind of urticaria a few times, can't stand to wear my glasses for my sight anymore (have myopia), fever sensations, feeling cold, felt so tired and nauseated i couldn't get out of the house nor bed, sunlight bothers me a lot especially inside malls and stores (which is horrible, i have to get out otherwise i will get sick), symptoms come and go, for 4 months i haven't had one single symptom and it started again. Now I have pin and needles near my mouth, in my cheeks, sensation that my body is sometimes shaking inside, plus i feel i cannot coordinate my arms properly. Once it happened that I couldn't speak, I was mumbling. People say its all in my head!

Things that make it worse:

Poor sleep
Exercise
Loud sounds
Massage
Bright lights, artificial lights (fluorescent lights, neons)
Crowded places
Cloudy days and hot weather
Stress

Thanks for taking time to read my story. Just wondering If I have Lyme or not, I'm desperate, just want my life back :(.

bump

Hi 25yrs,
Actually, Amoxicillin alone isn't enough to treat these infections. When amoxicillin is used, it must be used along side of another abx - probenecid - to keep it in the blood stream long enough to actually do enough killing.

And to be sure you understand, if you are still having symptoms, you still need treatment- either for these infections or other conditions commonly seen with these infections.

Hello everyone,

I have news. Just got tested this month for lyme disease and its co-infections ( I live in Europe).

These are my first tests.


Indirect Immunofluorescence (IIFT) Borrelia Burgdorferi - POSITIVE

Western blot IgG - Borrelia Burgdorferi- POSITIVE

Indirect Immunofluorescence (IIFT) - Bartonella Quintana - POSITIVE

Indirect Immunofluorescence (IIFT) - Chalmydia trachomatis - POSITIVE

Indirect Immunofluorescence (IIFT) - Mycoplasma hominis - POSITIVE

I suffer since 2012, so it is chronic if these tests are accurate. Do you think it can be cured since it is chronic? The doctor said I have to take 3 months in a row antibiotics. From what I read all over the internet, it can't be cured, even with antibiotics when it's chronic, you have it for the rest of your life and fortunately it can be controlled with a lot of detox, diets, herbs etc.. How about having children? I'm only 28 years old (female). I guess it is not possible? What do you take to keep it under control so you can be almost symptoms free and be able to function properly day to day?

Thank you very much!

Hi Alexys,
First of all, congratulations on getting a positive on your tests! At least you know what you are dealing with now.

As Girlie said, 3 months of treatment just isn't enough for anyone other than those that have only just been infected and have yet to have any symptoms.

The word "cured" is tricky. Most people believe that if you use the word cured that means that you also no longer have to worry about it coming back - which is a very real concern with Lyme. I like to use the word healed much better. It indicates that I have conquered the infection (which I have, twice), but doesn't imply that I don't have concerns about relapsing (which I will always have).

As far as having children, it's best if you wait until you have completed treatments, but you have no worries about having a good chance at having children without passing on these infections once you have completed treatments. Some children born to mothers with chronic Lyme are still free from the infections, like my own children. They are now adults (not sure when that happened!) and still have no signs of these infections.

After your first post above, I listed the sources for finding a​n ILADS ​(International Lyme and Associated Diseases Society)​ trained​ Lyme Literate Medical Doctor(LLMD) in your area to help you get the treatments you need to overcome these infections.

Anitas said...
Any updates from the author ?

Hasn’t been on the forum since 2015