Looking for LLMD in midtown NYC

Hi All!

How wonderful to find this wonderful forum, after trying other groups, this one sounds most helpful!!

I've been sick & on disability & medicaid for 25 yrs. being diagnosed with CFIDS/ME & fibromyalgia.
Just this last yr. read the Horowitz book on auto Immune diseases, took a standard Western blot with 3 positive
bands & told I didn't have Lyme, but as we know even 1 band indicates Lyme & co-infections.

I'm in an HMO that won't take blood for Igenx, since not affiliated.
I've been looking for an LLMD near me in midtown NYC. I'm aware they probably wont take my insurance & will have to pay out of pocket, but need to find one to get proper bloodwork & have someone oversee the whole process.
Have been doing some detox with a homeopath & not as flulike, but still mostly in bed with all the symptoms...

I'm so grateful to all those before me to help us novices

Thank you so much in advance for any leads...

Much gratitude & blessings & vibrant health to you all...

Mazzie

Post Edited By Moderator (Girlie) : 11/21/2015 2:54:09 PM (GMT-7)

Also, you will need to enable your email address so members can send you the names privately - as we don't post the names on the forum - for privacy reasons.

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Good luck!

The best Igenex test is the Lyme Disease Western Blot IgM and IgG.

As far as the co-infections go - they are even more unreliable/inaccurate than the Lyme WB.

Many of us only get the Lyme test. If I had a lot of $$ to spare, I might get the Bartonella and Babesia testing done - but I don't, so I won't.

No worries about the title of your post...we were all new at one point!!! We understand.

No, unfortunately, I am not feeling mostly well...not yet...but I'm determined to get there.
I have 'lost' some symptoms, but still have quite a few left to 'kick' off the train. They're 'ride' will be over soon...lol

The co-infections are diagnosed clinically. The Dr. will look at your presenting symptoms, along with your response to certain treatments. It is sometimes trial and error.

For instance...I tested positive for Lyme - so I did 9 1/2 months of antibiotics for lyme (along with some herbals) - and after all that time I still had a lot of symptoms left that weren't budging. At that time I had to take a break from antibiotics because my liver enzymes had gotten high.
After that, I started back on antibiotics for Bartonella co-infection - based on the fact that some symptoms weren't budging on the lyme antibiotics...and many were indicative of Bartonella.
Looking back, I think my Dr. spent too much time on Lyme - as I think Bartonella was the dominant infection.
So, now I have been on the bart drugs for three months...and counting.
I have started to add in herbals for Bart, as well.

Some LLMD's do want to test for the co-infections - but they can tell you that when you have your appointment.

Yes, I see your email option is enabled, so members can send you names by clicking on the blue envelope under your name at the left. Or they will tell you to email them (and you would click on their envelope)

That's sweet of you to add me to your morning Metta list...thank you, Marie!

I have to say i have been tempted to do the testing for bart and babesia - because a positive test result would confirm....But considering there are so many false negatives - it's probably not something i will do.

Although I haven't heard of Katina Makris - most likely others on here have.

It definitely can be done without antibiotics - in fact one of our Moderators - Traveler - she healed herself from a 40+ year infection...with herbals.
I'm sure she will be on here to 'cheer you on' at some point.

I wish you luck with the GoFundMe site - and hope you get lots of $ for treatment!
(You can't put a link in your posts to your site, though - against the forum rules)

Many do a combination of antibiotics and herbals to get well. That's what I'm attempting to do.

Thanks for your kind words.

This forum is not like any other support group - on or off-line.

You will meet many caring, helpful people here.

I honestly don't know where I'd be if I hadn't found this great community - I most likely would not have a diagnosis and would still be desperate and going further downhill.
Traveler was one of the first people to reach out to me and still helps me when I'm having trouble.
You will meet her - she is a wealth of knowledge.

I have a doctor in midtown NYC, did you get a name? Please email me if not. Thanks

I did the Igenex Lyme + full co-infection panel and it was $1700 about 9 months ago. I tested positive for Lyme and Babesia Duncani FISH. I'm glad I did because the symptoms can overlap greatly and its easier for the LLMD to know what to treat. Note this isn't necessary many docs treat on symptoms but any additional information helps.

For what its worth my Igenex test was ordered by an Integrative Doctor who happened to be in my Aetna plan so while I paid by credit card they did reimburse me per my plan for about 80% of it (the other 20% was considered experimental and they wouldn't cover it).

Try searching for doctors that practice functional or integrative medicine they can be more open than the majority of 'classically' trained doctors.