feeling hopeless

Hi everyone I am really getting depressed with all of this, I wanted a second opinion so I saw a md naturalpath took what he gave me and do not feel right on it spent 140.00on supplements I am really starting to get sick of al this crap...he put me on standard process calcium lactate,catelyn c,and catelyn f he said that the calcium lactate instead of staying in my blood it will go directly to my bones but I feel terrible taking it so I am stopping 3 supplements down the toilet.He also wants me to do a parasite cleanse with 2 supplements that I bought from him kind of scared to take it I also had to stop plaquenil because I thought it would put me in the hospital felt crazy on it,I prob do not ask enough questions because I feel weak and tired all the time, he did give me a test to do at home for my adrenals he thinks I have adrenal fatigue and maybe not Lyme I am even more confused I am so frustrated with Drs and getting know where it seems know one is compassionate I really don't trust them anymore and that is a terrible place to be can anyone please recommend a good Lyme literate natural path in pa or near phila that is not that expensive all these antibiotics just make me sick and I do not think that guy knew what he was talking about, feeling desperate....... thankyou

Hi trav thank you for getting back I am at my wits end, my symptoms are fatigue,muscle pain,depression,anxiety,some muscle twitching especially at night, feeling scared all the time, insomnia and then hard to get going in the morning.I just did my sauna trying to detox my system and drinking tons of filtered water and will take an Epson salt bath tonight.And yes I feel like I was ripped off again with supplements it's just so frustrating I am yet to find a compassionate Dr or natural path I am just sticking with my llmd because even though he does not talk that much he takes my insurance just do not know where to turn?

Hi petza can you please tell me how long you have Been sick? Are you on any antibiotics at all? And what herbs or protocol are you starting trying to get answers here because drs are pretty useless,if I do find someone compassionate and cares it would be a miracle meanwhile I will just keep praying....hugs

I got bit April 29
June 20 my neck hurt
June 23 I got a weird head pain behind my ear
June 30 my knees were really hurting so I got steroid injections in both knees
July 1 went to chiro for my head pain
July 2 went to GP and he diagnoses me with sinus problems and gave me a Z-pac for 5 days.
July 14 CT scan of brain - head still hurting - it came back negative
July 23 talked my GP into a lyme test - Quest negative
July 30 went to neuro - he order 3 MRI's (I didn't do any) he said "You don't get a headache with Lyme Disease" so I knew he was not the right doc for me.
Aug 18 finally got to an LLMD and started Ceftin and 3 days later started Biaxin had an Igenex test and 2 bands positive.
Sept 10 that LLMD asked me what I wanted to do now - dumbest question a doctor has ever asked me.
Sept 28 went to new LLMD and he started me on Beyond Balance - I began to feel better. I knew then that herbs would work for me.
Oct I added motherwort because I was really having blood pressure issues. I added Cat's Claw because I had taken it before and never had a reaction. I added Hawthorn and did well on it.
Nov 8 I started the big boys and did Japanese Knotweed. Oh my gosh I feel like I am going to heal!!
I added then Eleuthero and I got a real rapid heartbeat, then I tried adding Sida Acuta, it didn't work out because it gave me heart flutters.
I have now added Cryptolepis and am just beginning Red Root.
I only know how much better I feel if I read my journal. When I look back to July, I was hurting badly. I can see me getting well but it is not a quick one.
I am doing Buhner's protocol but I do add in the Beyond Balance Tox Ease GL. I really think it is helpful.
The most important thing for me is to remember Buhner's steps:
1. Support the collagen structures
2. Enhance immune function
3. Shut down inflammatory pathways
4. Now I can kill the suckers!

I would like to do just Herbals but I have been sick for 4 years before being diagnosed,I would not know where to start with the Herbals that is why I came on here praying someone can recommend someone I can afford.I do detox everyday did the sauna I will take a walk later and an epson salt bath tonight I drink water all day long.Glad you feel better than you did trying to stay strong but I am mentally wiped!!!!!!

Annette, you will continue to have inflammation issues until you kill the bacteria. Lyme is an inflammatory infection. You would literally fight inflammation practically every day for the rest of your life if you waited until you had it under control to treat these infections.

If you have addressed inflammation, then move on into treatment to finish addressing the cause of the inflammation.


Catchscooter - stick to those that know about these infections - ND's can be ILADS trained as well. If you wish to see an ND, just be sure that they are ILADS trained, but better yet, get referrals like you are asking for!! Those that have been treated by said doctor will know if they are capable of healing them or not.

I would ask them if they take patients even if they aren't CDC positive, how many Lyme patients they have healed - without them relapsing? What protocols they use​? ​Do they use any herbal preparations? What do they do when the patient plateaus, and more.

We have a really great list of suggested questions on page 2 of the "New to Lyme? Start here!" thread on the forum if you would like some more ideas. We are finding more and more doctors, even LLMD's that are giving in to the demands of their peers or the medical boards. You should kind of know where they stand before spending all kinds of money with them.

You also do need to increase the amount of detoxing you are doing. We have a great list of things you can do for detoxing and here is another great resource: www.tiredoflyme.com/detox-methods.html

When I was in treatment, I seemed to have the same kind of issues as those that have the MTHFR gene mutations - so I figured it was best for me to assume that I did and work to get my body to detox much better. It took a lot of diet changes as things with my body changed, I used a foot soak daily (the full baths were too much for me), taking ALA, dry skin brushing, making sure my bowels moved at least once a day (sorry if it's TMI!) pushing myself to drink at least 64 ounces of lemon water each and every day, liver/gall bladder flushes (all natural), oil pulling, taking activated charcoal and keeping the amount of stress in my life at a bare minimum.

Thank you travelor do you have a list of ilads trained naturalpaths could you email that to me thankyou

Thanks for posting the link Traveler.

The one I was thinking of is on that list: Julie McIntyre. Her first consult is $150. (Not bad, if you ask me...)

Traveler I have on my list a couple more restorative (that's what I call them) herbs and then on to the killers. I need my lymph system to be a little more healthy and not inflamed. It is truly compromised the most. This is the head pain I get behind my ears. Red root is addressing it.

I am doing this on my own, except for the expertise I get here and all the Buhner books I can get my hands on.

I don't think my LLMD, Internal Medicine Physician or my Orthopedic Surgeon will argue with me. I am one hard headed woman and I don't do conventional medicine. Too many times the side effects list is way too long. They know if they prescribe it, they better have a dang good reason to outweigh those side effects.

Catchscooter, lots of people on this forum use Buhners and have had some good healing. It's a good protocol.

And yes, please send me an email asking for LLND's in the Philly, Pa area and I'll be happy to send you the list!

PeteZa ~ Sounds like you have it under control. Congrats!

Man! I wish I could meet each and every one of you!!!

Annette - you said in one of your posts that you've just added in Cryptolepis.

You do know it's a 'killer' herb, right?

catchscooter - I think Rowingmom had consulted with Julie McIntyre - and maybe even Mister Mike?
Do you remember Traveler?
You could start a new thread and ask the question on here.

Yes, I believe that both Rowingmom and Mr. Mike have consulted with Julie McIntyre.

Annette, in Buhner's Herbal Antibiotics book, on page 90, he states "the top 5 systemic herbal antibiotics: Cryptolepis, Sida, Alchornea, Bindens, Artemesia."

But then he goes on to say that it's okay to use it long term as well - that's cryptolepis, not cryptolepine. "Cryptolepine is an isolated constituent, and like most isolated constituents that are made into pharmaceuticals, it produces side effects that don't appear when the whole herb is used. Cryptolepis itself has not been found to be cytotoxic to people."

Middle of page 93 in the same book as stated above.

And we're all still learning!!

catchscooter, I just want to say one thing that Buhner repeats over and over. "There is no one way to healing in the treatment of Lyme disease."

Just because it seems to be working for me, it may not for you. And Buhner has been looking since 2004. So do not be swayed by what works for me. You may be on the right course for you. That should be between you and your doctor. However, only YOU will know how you feel and so you are in charge.