Posted 2/4/2016 5:53 PM (GMT -5)
I followed the counsel of several on the board. If it walks like a duck, looks like a duck, quacks like a duck - then it is a duck. As soon as I received information here, I decided it wouldn't hurt to make nutritional adjustments - and I began to change my diet, and add certain supplements. I also added colloidal silver (builds immune, kills bacteria) and had what seemed (now that I understand this) like a herx reaction. My Elisa and Western Blot both came back negative and I gave my Dr. a test to see whether I would change GP's or not. When I went in to discuss symptoms, he treated me like the symptoms were due to mental illness, in part. I asked him, given this information, about the test being negative, if he would 100% rule out Lyme disease - he said pretty much. I decided then, I didn't have the energy for an uphill battle. I checked out the Stephen Bruner protocol and was really surprised that I had intuitively added support he suggests - stuff for inflammation and stuff to support the immune system and also collagen structures. I see now, I have moved much swifter than he suggests. I added Cats Claw 4 days ago and within 24 hours started to have what appears to be a Herx (I couldn't sleep two nights it was so intense). I think now, I need to back off, rest a bit, keep up the good nutrition, buy his book, and also read the other book I ordered, by Horowitz. Synchronistically, a friend came into the office where I work and asked me how I was, heard the story, and told me his mother has lyme disease. He kept on me to talk to her. Wow! She had a tick bite in Illinois, and the bulls eye rash, and tested negative on the tests. Her doctors told her it was impossible to have Lyme because it didn't exist in Illinois. She wound up going to CT and seeing a pioneer lyme Dr (this was awhile ago). She told him, her tests were negative, by her symptoms he was sure it was lyme, and went into the bulls eye rash (hers lasted 6 months) and took a tissue sample. She advised, given my exposure and symptoms to rule out lyme, and to also get a new GP. My therapist and also my psychiatrist who I get support from for PTSD also suggested, given how my GP acted, that I should flow with having a GP I trust, and feel safe with. Today I sent him a note. My primary focus right now is what an MRA showed. I sensed my system had multiple things going on, that my symptoms weren't from just one thing. I have an aneurysm in my carotid artery. I see a specialist next week. Oey vey. My life has suddenly become much simpler: hang on to my day job, good nutrition, rest, keep my body moving - anything else, well, go slow. This may not necessarily be lyme - but I do suspect it is a tick borne disease because of how high I scored on the questionnaire Horowotiz has (I found one online). The herx reaction this time around has created symptoms I haven't had before - hot itchy knees, now achy knees, muscle aches/spasms, and the pains I have intensify (ears, neck) and today new itchy places. With Lyme, does the places where one experiences muscular pain jump around? It isn't always the same place. A part of me still can't believe it could possibly be a tick born disease because I read how awful it is to live with/treat and I don't want that for myself, but I am continuing the nutritional path and supplements which are beyond my paycheck to paycheck means. First round is coming out of my paycheck, and the rest I will have to take out of savings and invest in my health. I have been craving/intuitively - something I've never had before - aloe vera juice. I looked up what it treats, and it makes sense given my body right now.