Posted 2/26/2016 6:30 AM (GMT -5)
Hi suzee! I have details of a doc in the UK who diagnosed and is treating me. I live in Greece, but am from the North East of the UK.
If you drop me an email I can give you contact details, costs, etc, I can't post details here but will be happy to share any and all info I have and hopefully answer any questions you have too :)
Hope I can help :)