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Miscarriage lyme symptoms return

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Posted 3/7/2016 1:55 PM (GMT -5)
Hi Everyone,

I recently had a miscarriage, started two weeks ago. I was 8 weeks along. I miscarried naturally no need for DNC or medicine. It was awful. I don't think lyme played a role, maybe it did, who knows. I had been on Amox as per my LLMD as soon as I found out I was pregnant (at 4 weeks). My OB was on board with the Amox. (A brief history, I got lyme & bart in 2013, did abx for a few months then went all herbs - first byron white then Buhner full lyme and bart for 1year and half and was feeling about 80%). I also went off all my Buhner herbs when I found out I was pregnant. The pregnancy was a big surprise btw.

On Saturday I started to get really intense pain on top left of my head - a kind of stabbing pain, the pain has migrated and I feel pressure wherever it is. The left side of my face feels more tense. The headache ebbs and flows and sometimes feels like one of my very first symptoms which was intense back of the head headaches (before I knew I had lyme I thought I had a brain tumor). So here's my question, is this my lyme/bart coming back or hormonal stuff. I know noone here is a doctor but if anyone's been through anything similar I'd like to hear from you if possible.

Oh and here's another kicker. Last week when I had an ultrasound to check on the progress of the miscarriage they couldn't find my left kidney and looks like I may not have one after all. I'm in the process of dealing with this but I'm really concerned about the headache lasting 3 days on and off so if anyone can help with any guidance I'd appreciate it. Thanks.
Posted 3/7/2016 2:16 PM (GMT -5)
It certainly could be the Lyme flaring up. I didn't find out I had Lyme until I had two early miscarriages after my son was born. After each pregnancy, my symptoms became worse and worse. Pregnancy, even in the early stages, puts a lot of stress on our bodies! I was in pretty rough shape after my third pregnancy. My immune system just couldn't handle it all. And the headache you describe sure sounds a lot like my Lyme headaches.

I'm so sorry for your loss and all you've had to go through. I hope you find physical and emotional healing.
Posted 3/7/2016 2:54 PM (GMT -5)
I am so very sorry for your loss also. Migrating pain is generally lyme and not hormonal. Head pain on the back of the head is my most horrible symptom from lyme.

Again, I am so very sorry you had to go through this.
Posted 3/7/2016 3:37 PM (GMT -5)
I'm so very sorry for your loss. I've had 3 miscarriages due to Lyme (@2 months, 3 months, 5 months), so it could very well have been the Lyme for you as well. Either way, it's really sad. I have also gone on to have beautiful, healthy kids though.

I would suggest that you get re-evaluated for a Lyme relapse. Can you still get in to see your LL doc? Something like this could definitely precipitate a relapse.
While I would definitely assume that there is a LOT of hormonal things going on with your body right now that should be addressed, I would definitely encourage you to get back in to see your LL doc or restart Buhner's herbs again. If you do restart Buhner's, please be sure to start off on a low dose again. We surely don't want you herxing hard right now!

May you heal from both of these things well. (((((((hugs)))))))
Posted 3/7/2016 8:25 PM (GMT -5)
Thanks so much to all of you and I'm so sorry that both of you went through this (Traveler and Nosila).

I am treating again for lyme, I saw my LLMD the other day.

This headache is making me nervous. It feels more like it's on the left side and I get some stabbing pains. Anyone else with this?

thank you all!
Posted 3/8/2016 8:11 AM (GMT -5)
Yes, your headaches sound a lot like mine, especially after I started treating for bart. Stabbing pains that move around, but are mainly on one side of my head. I also get some very sharp pains directly behind my ear when the headaches are going on. I get the headaches, as well as other lyme symptoms, around the beginning of my period.
Posted 3/8/2016 9:24 AM (GMT -5)
hi kitkate - I am so so sorry. I suffered several miscarriages too - supposedly due to genetics, but I am not sure if lyme played a role in the last one. Traveler - how did you know it was lyme that caused your miscarriages?

as for the headache - I had an intense migraine that lasted 3 weeks after my last miscarriage. Unfortunately, my miscarriage happened at 11 weeks, and naturally, but we knew it was an empty sac from the beginning, and they didn't schedule a DNC soon enough for me. So my miscarriage brought me to the ER and i still needed a DNC.

Are you taking any iron? Bc headaches can be a sign of lack of something or too much of something. Since you lost blood - your body may be craving iron, which could be causing the headaches. Are you taking any multivites? What happened with me, I got the headache bc of the blood and iron loss and hormone fluctuation, but then it didn't go away because I was still taking the iron and didn't need it anymore. So once I stopped the iron, my headaches went away. It can be very tricky, but the hormone fluctuation can also be the cause of headaches. Are you taking anything for the headaches at this moment? There are OTC combos and natural remedies I can recommend.

IMO the headaches would be more due to the miscarriage events rather than lyme, but that's just my thought.
Posted 3/8/2016 9:53 AM (GMT -5)
oh and also, did the headaches start before or after you re-initiated lyme treatment?
Posted 3/9/2016 11:32 AM (GMT -5)
Thanks so much for your response Chapelle and I'm so sorry you had to go through this multiple times and sorry to hear about your 3 week migraine. When did that start for you?

I started back on my herbs before the headaches. Headaches started a little over a week after the last of the miscarriage. So anything that may have worked for you to relieve the pain that you'd like to share would be great.

And again thank you all for your support.
Posted 3/9/2016 1:43 PM (GMT -5)

Chapelle said...
hi kitkate - I am so so sorry. I suffered several miscarriages too - supposedly due to genetics, but I am not sure if lyme played a role in the last one. Traveler - how did you know it was lyme that caused your miscarriages?

I was a very lucky young lady (I was only 20) back then. I had a OB/GYN that cared enough to find out why, at 16 weeks I would suddenly miscarry a child. They took the baby and examined it thoroughly and determined there were no physical reasons with the child that would have caused my body to abort. My doc then did ultrasounds, blood tests and such to see if he could determine why my body wouldn't/couldn't carry a child full term (that was my 3rd miscarriage) and couldn't find any reasons. Of course, Lyme was never once considered either. Would have been the perfect time to check too. Oh well, hindsight is the only one that's 20/20.

This same doctor followed me through my next pregnancy and when I started spotting at 6 months, he ordered complete bed rest (not cool!!!). At 7 months along, I suddenly went into labor. I was admitted to the hospital (spent Christmas eve/Christmas day there) and then again for New Year's Eve I was admitted again for preterm labor. I finally had my baby girl on February 9th. I carried her a full 10 months. I carried my second child a full 10 months as well and had to be induced both times. So my issues continued on.

I was a complete mystery to my OB/GYN's. They had no idea what was going on with my body and why it was doing things so weird. My labor and delivery were incredibly hard as well, but I surely don't want to post a horror story on here, so I'll leave that out. I assume those issues were due to having Lyme and company for 13 years by the time I had my daughter, 15 years by the time I had my son.
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