Need some serious input.

Hey everyone, I'm new here and really need input from others who have lyme. My story might be long so bear with me. :)

I was diagnosed with lyme almost 4 years ago. I had the bulls eye rash and everything. I went to an urgent care and they prescribed me either 10 days or 2 weeks of some antibiotic I don't remember. The doctor said that after the antibiotic course to check in with my primary.

I'm terrified of doctors so I never did but I felt fine so whatever. Since then I've noticed weird symptoms that I've put off over the years.

Sporadically my joints will ache, become stiff and crack. I've been to the doctor for tendinitis in my hands.
I've noticed my short term memory lapse. I lose track of my thoughts and have a hard time finding words sometimes. I get dizzy frequently. I have a heart murmur. ..which I'm almost positive I didn't have before being bitten.

Shortly after I was "treated" I developed this weird night eating syndrome, and I wake up at least 4 times throughout the night. Sometimes to eat, sometimes not. My legs will ache at night to where I can't fall asleep. My skin breaks out in these little mosquito bite bumps and then they disappear.

I have really weird stomach issues especially now. My stomach constantly hurts, when I eat or when I dont, I get this weird white patch on my tongue which I believe is due to silent acid reflux?

I've been severely stressed out for a couple of months and I think i made something come out of hiding (I also had mono about ten years ago)
I've had stiff neck and headache issues, along with spleen pain lately.

I finally got a primary doctor who did a butt load of blood work. My cbc is normal, I don't have thyroid or autoimmune issues. I tested negative for hiv. Only thing she found was a vitamin d deficiency. I asked her to see if I still had lyme...she said there were antibodies in my blood but no new infection.

So I guess what I'm trying to get at is, do you guys think I wasn't treated long enough? Should I consider that lyme could be the cause of all this all along?

Or should I start thinking it's something else?

Any input is greatly appreciated. Thanks. :)

I would want to see the lyme test results. You can ask for a copy and bring it here and we can see what it really says. That would be how I would first start.

However, lyme is a clinical diagnosis but I don't know of many regular doctors that will diagnosis it as that.

A lyme literate medical doctor (LLMD or LLND) will.

Have you read the first thread New To Lyme? .... Start Here!

That thread at the top of the page will have a ton of information in it. Even how to find a LLMD.

If any of it is confusing, please ask. That is what we are here for.

The bulls eye rash - means lyme disease...testing is not necessary - it is active infection and needs treatment.

If under treated (which yours was) - then the infection will continue to grow/spread...and that is what happened to you.

If you need help finding a LLMD, just start a new thread titled: "Looking for LLMD in/near______" and fill in the blank.
We don't post names of LLMD"s on here - for privacy reasons, so you will need to enable your email options, so members can privately send you the names.

Thanks so much for all the input! Lately I've been complaining about how I have been feeling to my friends and such and they all think I'm crazy.

I had the white stuff on my tongue a couple of times over the past few years. When I went to my doctor, (last week) she said my tongue looked normal (because I asked her to look at it ) and she said it did. The patch is always in the same spot and it's like bumpy and sometimes painful. I described this to her and she said it could be my taste buds swelling so much due to a build up of acid. I was prescribed an acid reflux medication.

It would make sense due to my current stomach issues.

I have a cardiologist appointment this Friday for my heart murmur. I'm curious as to what they have to say.

I've researched some LLMDs in my area. And I'm just nervous about the medical bills because most don't take any insurance.

I really appreciate all the advice. I've been researching my symptoms for a few months and honestly this makes the most sense, especially since all my blood work checked out.

And I definitely need to take probiotics regularly. :) and thank you for the detox website!

My acupuncturist treated me for candida years ago. Absolutely NO medications. But the diet was extensively limiting. He would only take me as a patient if I did the candida cleanse for 6 weeks. I did not have candida, but that is what he makes all of his patients do. It was terribly hard and I had to eat a sandwich on lettuce or a tortilla. That is what I remember.

If your doctor said it wasn't candida or thrush, then maybe you should see your dentist. My husband had a rough patch in his mouth and he went to the dentist and then to an oral surgeon that took a biopsy and it is just a rough patch and nothing more. But the peace of mind is so nice to have.

I have been cutting back on gluten especially. Dairy is so hard considering I love coffee even though it makes me feel bad.

I should also mention that I just started eating meat again. I've been a pescetarian for a few years now and think it's time to finally add meat like chicken and beef back into my diet.

As far as my stomach and tongue, I just Googled the symptoms of a candida overgrowth and this makes a lot of sense.

What herbs are you taking? And I'm really interested in this kit. I hope it works.

Can lyme cause a yeast overgrowth?
Also I was never tested for any co infections.

Sorry for all the questions! I never took lyme seriously because until recently I never knew how serious it could potentially be.
Thank you all for being patient with me.