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Posted 3/29/2016 11:04 AM (GMT -5)
I see an LLMD who is treating for possible Lyme (IGM 41++ & 66+; IGG 31 IND, 39 IND & 41++). I have to see my GP for all other ailments. Anyway, every time I see my GP, she questions me about my LLMD and why he is treating me when I don't have Lyme (cause the tests said negative). She always makes me feel like crap, and that this is all in my head. She rolls her eyes whenever I even mention Lyme :( Anyone else go through this with their practitioners?
Posted 3/29/2016 11:32 AM (GMT -5)
Its time to either stop having any Lyme related conversations with her, or find another PCP.

My PCP did diagnose Lyme, saw my EM rash, and treated for a full 30 days of doxy (but at the lower 200 mg per day dose). Then declared that I was cured. When odd symptoms began to appear three years later, he dismissed any Lyme connection, sent me first to a neuro, then to a rhymi, before I had to fire all three of them after finding my first LLMD.

Check with you local Lyme support group to find a more "lyme friendly" PCP in your area.
Posted 3/29/2016 12:07 PM (GMT -5)
Wow, sorry you have a doc like that. I honestly would flip if my GP would treat me like that. My GP questioned me one time about my LDN use for Hashimotos and I told him I had to go elsewhere because he was more interested in sitting back and watching me suffer than being proactive in my treatment. His whole tune changed after that. But I tell anyone, if your doc gives you crap about treatment options that you feel you need, and they cant explain why its not a good idea, run fast. At that point theyre no longer any good to you other than the sniffles.
Posted 3/29/2016 12:24 PM (GMT -5)
That's too bad your GP has that attitude.

I'm lucky in that my GP never questions my treatment..and is supporting me with monthly liver/kidney function tests.

I don't push my luck though...and don't discuss my treatment with her...unless she asks.
Posted 3/29/2016 12:50 PM (GMT -5)
Find a new PCP. You shouldn't feel that you have to either hide information or have it ridiculed. That's not right. You shouldn't feel uncomfortable because she hasn't taken the time to educate herself.
Posted 3/29/2016 1:55 PM (GMT -5)
It's horrid. I discuss the Lyme treatment with her only because I feel (for my health) that she needs to know what meds I'm on. The sad thing is, she has been my GP for over 20 yrs, and I never had problems with her attitude til now.
Posted 3/29/2016 3:18 PM (GMT -5)
I agree, find another PCP. You don't have to put up with their arrogance or ignorance. It's her fault that she's not knowledgeable enough to realize that a negative test result does not mean you don't have the infection.

Maybe you can suggest she get ILADS training so she will have a better understanding of these things? Just don't do that if you aren't prepared to find another doctor!! Some doctors are highly offended at things like that!
Posted 3/29/2016 5:55 PM (GMT -5)
If she's been your GP for 20 years you could try to provide her with some information before making a change.

I found these links impressive and very hard for even the most stubborn to argue with. www.columbia-lyme.org/patients/ld_lyme_symptoms.html

www.natureworldnews.com/articles/15336/20150624/lyme-disease-research-now-home-johns-hopkins.htm

news.stanford.edu/news/2015/august/ticks-lyme-risk-081815.html

news.stanford.edu/news/2014/february/ticks-bay-area-021814.html

The Stanford studies are one's I'm familiar with because I live relatively near Stanford. A few years ago it was standard to hear there's no Lyme in California. Now the CDC recognizes California as a hot bed for Lyme.

www.fox5ny.com/news/104740644-video

www.bayarealyme.org/blog/cdc-talk/ A few excerpts- As Chief of the CDC’s Bacterial Diseases Branch, Division of Vector-Borne Diseases in Fort Collins, Colorado, Dr. Beard coordinates CDC’s programs on Lyme disease, plague, and tularemia. His scientific interests include public health and the biology, ecology, and genetics of insect-borne diseases and vectors.
There has been a dramatic increase in the incidence and geographic range of Lyme infections across the US, now an estimated 244,000-444,000 infections per year, with cases reported in all 50 states
Posted 3/29/2016 9:28 PM (GMT -5)
Idiot vs. not-idiot.

Sorry. Too much anger. My PCP pulled the same move on me even after I showed her positive tests. So frustrating. I went elsewhere.
Posted 4/2/2016 10:48 PM (GMT -5)
Why stay with a doctor who rolls her eyes at you?

I've have learned through (painful) lifetime experiences that the only way someone can "make you feel" something is if you let them. Stop letting people "make you feel" bad. You're the only one who can change that. She's not going to change. You have the power.
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